OBJEVTIVES: Multiple sclerosis is a chronic inflammatory disease of the central nervous system with unknown cause and without any curable treatment. Research aiming at defining the pathogenesis of the disease is therefore needed.
METHODS: The Norwegian Multiple Sclerosis Registry and Biobank has been established for systematic collection of clinical and epidemiological data as well as biological samples. Data collection is based on informed consent from the individual patients and recordings by the treating neurologists.
RESULTS: All researchers have, by application, access to data and biological samples from the Norwegian Multiple Sclerosis Registry and Biobank.
CONCLUSION: By this combined effort from both patients and health care personnel, the Registry and Biobank aims to facilitate research for improved understanding of disease mechanisms and improved health care in multiple sclerosis.
Info for our Norwegian Readers, make sure you get registered talk to your Neuro. Vennligst registrer.
There are many Registries being set up all over the place, which will help in the International effort against MS.