What do YOU call a Neurologist?

I am currently doing yet another poll on the description of someone with MS and maybe will use this at ECTRIMS. 

The question is….How do you prefer to be labelled/described?. 

Some of the the terms you think are OK and some you think are pretty poor. I will talk about this soon.

However, as an exercise in reverse. I ask you ….What we should call someone who treats a person with MS?

Please be imaginative. Some of the responses could be quite formal but I also want some of the answers to be tongue-in-cheek, so I can use them in a talk in the near future. 

I can come up with quite a few but let’s have fun together.  
Let’s get it off your chest.

I’ll explain later

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  • I call my Neurologist a Genius. That's because he's cured me with so much more than my MS. We're talking serious stuff here. He knows this. Let's hope the doctors he trains try to emulate him.

  • I love that cartoon 🙂

    I simply refer to my neurologist and MS nurse by their proper names – this is because I try to introduce as little as possible to do with MS/neurology into my sphere, unless I absolutely have to. Ok I know I read your blog but somehow that's different!

  • If I'm speaking with other people about them, I refer to them as "my neurologist" and "my MS nurse" or as short-hand, "my neuro" and "my nurse". I like them and I trust them, which is all that matters to me, and I hope that unless it's something insulting (never!), what I call them shouldn't matter!

  • I refer to my GP who treats my MS as my life-saver/rock. My neuro who got me so upset that I got a relapse a few days after the appointment (and am in the process of eliminating/replacing is a pompous, ignorant SH***** HEAD.

    • Ha, well I don't say it to his face but I am VERY tempted!

      You have to understand Mouse that what you have at Barts is an oasis of loveliness (no irony) in comparison to the thousands of indifferent neuros who fuss over old folks with migraines because old folks are privately insured. If you have MS and a half-working brain and want to tailor your therapy and not be flooded with meds your neuro gets as pharma gifts then your are public enemy (I live in a country which produces most of the MS drugs in Europe so go figure). Also getting expensive blood tests, tomography, scans and extra treatments is a constant struggle which is very upsetting if you are having a relapse and want to see what's wrong.

    • We have had the pleasure of doing the "Meet the Scientists" as the "MS Life" sessions for the UK MS Society for a number of years,

      There we get to meet looks of MSers from around the country (UK).

      We always take some Neuros, often incognito so they shed their grey suits, so they can answer the clinically relevant stuff.

      It is very clear that many people do not see all neuros as "gods-gift" and many could do with an ego-transplant. I remember ProfG commenting that "they (Msers) really don't like us (neuros)".

      I suppose if they (neuros)were spreading a little more love and providing decent treatments (lack of which is not their really their fault) then the feel good factor would increase.

      We did a "Big Brother Chair" session (where people could speak to camera whilst sat in a massive gold chair) in our outpatient clinic and even in the Oasis…we still have a lot to learn……At least ProfG is trying to listen.

      However the poor old scientists also get to feel the effects of the "silken tongue lashing" from our clinical colleagues so you are not alone 🙂

    • I still want to add something important Mouse which you could bring up at ECTRIMS. The feeling of many MSers like myself of being ignored & bullied even by a neuro leads to the so often-quoted missed appointments and consequently even, as in my case, break in therapy. Reason – MS-er is afraid of the neuro, doesn't go to the check-up, doesn't pick a new prescription, is afraid to suggest a new theraphy cos the old is not working but neuro insists everything is fine, neuro doesn't want to give an expensive scan and just knocks on my knee a few times, see you in 6 months etc. (happened to me last year cost me 3 new lesions which came out this summer!). Since we are talking about stress as a trigger – I believe psychological training should be MANDATORY for docs treating brain diseases especially in MS and especially in an illness which affects young, often stressed, anguished women (although male MSers also need comfort, logically). This should be thematised on a broader scale because lastly it is financially detrimental for the state if MS-ers don't take drugs because of the lack of support of their docs (how crazy is that?!). Also, my posts are in no way a criticism of YOU at Barts – you are my stars 🙂



  • I refer to my old doctor as the neurologist who treated me in the hospital. I refer to my new doctor as my MS specialist.

  • I call her "Mum" we discuss all the positive things I do in my life, dating disasters (mine, not hers), and she does lecture me – literally! MS is not her speciality, but she's the one that monitors me. I see a 'MS ologist' as required, new MS drugs that need discussion – she is "all business" and has the personality of a house plant – I don't use her name in conversation with her, but she is well known by the description of her personality. My best friend sees "Dr Dishy" – can you imagine a neurologist who looks like George Clooney! I gave serious consideration to changing – however a patient visit would be confounded by the fact that being in his presence would induce panting, dilated pupils, heavy breathing and spontaneous hair flicking.

  • I was discussing my neurologist with a fellow MS'er last week and we both said the same thing – lovely guy, looks like a rabbit caught in the headlights !

  • Other people who work with him think he is an optimist. As far as I am concerned he is Mr Helpful. No he has not cured me but helped me to live with MS

  • "Man of few words"…….pick out your preferred DMT from behind the counter and see you in 6-12 mos. "Good luck"

  • My current team are brilliant and I refer to them by their first names but to people who don't know them I use the terms MS Neuro and MS Nurse. My previous neuro couldn't make up his mind about anything and kept me dragging around in LimboLand for 6 long years without deciding to diagnose or treat me in spite of ever increasing and disabling relapses. Apart from a few unpublishable epithets I usually called him Dr Waffle-Bum.

  • My neurologist is "Mrs.Anonymous" as I have never met her. I guess she knows there is nothing she can do for me. My MS nurse, on the other hand, is "Mrs. Marvellous" as she tries to help in any way she can.

  • The MDs agree…We all love our Nurses:-)

    I don't know where we would be without out MS nurses. They play a massive part in Team G activities,

    • Great now we have a range of responses..from standard to offensive and in some cases disturbing.

      I just wanted these to make the light-hearted point to scientists/clinicians about thinking about how we address people and sensitivities.

      We have asked what you prefer, and assessed what is actually being used. Will the be the same? Maybe we can guess, but it is good to have the data in hand.

  • My neuro or Dr. I had a relapse a few days after a neurologist appointment. He got me upset by his bedside manner. It's unfortunate as it could of been avoided this relapse. What I am looking for in a neurologist is for them to tell me what I have wrong with me. Even when I am examined and they find something abnormal I would appreciate them telling as I want to know. I want them to be sympathetic too.

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