George Osborne’s recent benefit cap will limit the amount of money that the Government spends on welfare in relation to people with MS living England, Wales and Northern Ireland. Scotland has some flexibility in relation social spending. Welfare spending, excluding the state pension and some unemployment benefits, will be capped next year at £119.5billion. In this context the caps seem short...
MS Life 2014
Are you coming to MS Life 2014
There’s still time to Register.
Come see Members of TeamG and Friends
26 Apr 2014 10:00AM – 27 Apr 2014 5:00PMLocation:Manchester Centralhttp://www.mssociety.org.uk/ms-events/2011/11/ms-life-2014
Should Primary Progresssive MS be an Orphan Disease
We are discussing how we get treatments to progressive MSers. We need the Big Pharma Alternative and a change in view Currently there are no approved DMT for progressive MS and when trials are done, most times the trials are done in Secondary Progressive MS. This is because there are more people with SPMS than PPMS and so trials are easier to recruit and do. However, as we all know PPMSers feel...
Neuroprotection on top of immunosuppression is required.
Narayanan D, Cheng H, Bonem KN, Saenz R, Tang RA, Frishman LJ. Tracking changes over time in retinal nerve fiber layer and ganglion cell-inner plexiform layer thickness in multiple sclerosis. Mult Scler. 2014 Mar. [Epub ahead of print] BACKGROUND: Neurodegeneration plays an important role in permanent disability in multiple sclerosis. OBJECTIVE:The objective of this paper is to...
CCSVI March
Mancini M, Lanzillo R, Liuzzi R, Di Donato O, Ragucci M, Monti S, Salvatore E, Morra VB, Salvatore M. Internal jugular vein blood flow in multiple sclerosis patients and matched controls. PLoS One. 2014 Mar 27;9(3):e92730. doi: 10.1371/journal.pone.0092730. eCollection 2014. The aim of the study was to investigate the Internal Jugular Veins dynamics using contrast enhanced ultrasonography in...
Beta interferon neutralizing antibodies determined by your genes
Link J, Lundkvist Ryner M, Fink K, Hermanrud C, Lima I, Brynedal B, Kockum I, Hillert J, Fogdell-Hahn A. Human leucocyte antigen genes and interferon Beta preparations influence risk of developing neutralizing anti-drug antibodies in multiple sclerosis. PLoS One. 2014 Mar 7;9(3):e90479. doi: 10.1371/journal.pone.0090479. eCollection 2014. A significant proportion of patients with...
Digesting Science Did You Miss the Research Day Today?
Today was one of the Research Days held by UCLP at Great Ormond Street the Home of the World Famous Children’s Hospital. We have been doing Digesting Science for Children of MSers, if you have not seen it, check it out, but today some members of TeamG did Digesting Science for Children with MS. This was organised by Alison and thanks for all her hard work. ...
Male Sexual Problems
Lew-Starowicz M, Rola R. Sexual Dysfunctions and Sexual Quality of Life in Men with Multiple Sclerosis. J Sex Med. 2014 Feb. doi: 10.1111/jsm.12474. [Epub ahead of print] INTRODUCTION: Multiple sclerosis (MS) is one of the most frequent diseases of the central nervous system and usually occurs at the age when people would be expected to be in the prime of their sexual lives...
Now the COP wars
#MS Research #MSBlog Cop wars on the way as Teva get competition We recent post on the MOD wars as alternatives are in development for FingoliMOD, now the COP wars Copaxone also originally known as COP-1 and now know as glaterimer acetate, the biggest grossing MS drug has competitors. This was the first drug...
The cost of MS is black and white
Smith W, McCrone P, Goddard C, Gao W, Burman R, Jackson D, Higginson I, Silber E, Koffman J. Comparisons of Costs between Black Caribbean and White British Patients with Advanced Multiple Sclerosis in the UK. Mult Scler Int. 2014;2014:613701. doi: 10.1155/2014/613701. Epub 2014 Feb 5 Background. Multiple sclerosis (MS) is now more common among black and minority ethnic groups in the UK but little...