Scientists and Neuros and health care professionals write papers every day and you are increasingly getting to see them with open source information. It is interesting how they refer to you in these papers and grants. Maybe it is time you said what you prefer.
What’s In Name?
We are seeking independent assistance to get a bigger sample size
to address journal editors concerns
Are you over 18, living in the UK , with a confirmed diagnosis of Multiple Sclerosis? (Sorry if you are not UK based, as part of my awareness we I will write to NARCOSMS in the USA, so see if they can do the same thing) Then you need to take part in this ground breaking study (Click here)
Once you have completed the registration form you will find a series of questionnaires please complete them, notably
What’s in a Name.
If you opt-out from the MS Register, your details will be deleted
If, at any point, you decide you would rather not continue to take part in the MS Register, just let the MS Register know. Although the information you have given them through our online questionnaires or clinical study will remain in their database, they will delete your name and address and will have no way of linking this information to you.
Disclaimer By completing our survey “What’s in a Name” you are consenting to the data you provide being analysed by the MS register and possibly Professors Giovannoni and Baker and their collaborators. Results of these surveys may be submitted for publication but will be anonymous.