Good news is we have been allocated a booth at ECTRIMS for our #ThinkHand campaign.
“Your response to the survey has been excellent, but would like even more responses to make our ECTRIMS poster as definitive as possible.”
“We are also collecting additional ideas from you on what hand function means to you as a person with MS. What functions don’t you want to lose if your MS progresses to involve your arms and hands. Don’t be shy we need your contributions. I envisage us developoing a hand function item bank with hundreds of hand functions included. You will then be able to define your own ABILHAND PROM that is customised to you.”
“Finally, whilst on vacation last week I started to read ‘The Hand‘, by Neurologist Frank Wilson. In the book he describes how the use of the hand shapes the brain, language and human culture. The book is quite technical and assumes a lot of background knowledge; so not an easy read for the novice. I was, however, very fortunate and privleged, to be taught the evolutionary aspects of the anatomy of hand by Professor Philip Tobias in my second year at medical school. Prof Tobias was a paleoanthroplogist and a truly inspiring lecturer. What he didn’t teach me, however, is the link between hand function and language. It is clear that if you can’t use your hands you lose some language function; this is something that is not covered in the ABILHAND questionnaire above.”
“What the last few year’s have taught me is how important hand function is across so many dimensions of life. As a community we need to do as much as we can to protect hand function in pwMS. Finally, what do you think of these 3D renditions of the hand? You can play with them!”