Somebody let us know yesterday what the true meaning of humbug is. ‘Scrooge uses humbug to describe people who speak of love and charity but are being insincere. It is a pretence of the goodwill of the festive season and Scrooge does not want to be a part of the pretence’.
At a work drinks party last night we were debating whether or not it was appropriate for the MS Society to use fictionalised stories about people with MS at Christmas to raise money. What do you think? I am sure you have enough of your own stories to fill a book.
We are always touched by the personal stories you as a community are prepared to share with us; the following are three examples from yesterday.
…… “I’ve been indoors for 3 weeks because of a bad exacerbation. But I have a loving husband and son caring for me. I can walk somewhat, not drive yet. There are so many others who aren’t as blessed as me, who need our love and care and, of course, money to help toward that.”….
…… “My aunt was bedridden with MS by 50, and could only move her head by 55. She lived like that until she was 83. She didn’t want to die though, she loved seeing her family and watching old films. I would love her strength and will.”……
…… “My grandmother died from breast cancer in 2012 because she was too embarrassed to tell anyone. The doctors, who were limited in what they could after she presented to them finally, were very kind and caring, to both her and my dad.
Before my partner was formally diagnosed with breast cancer, her oncologist had told her that it was a sweat gland (atypical presentation and she was too young). When it became evident that it was cancer, his guilt and quick action were equally obvious and saved her life (the aggressive cancer hadn’t spread during the delay and from the date on diagnosis, she was operated on in the public system literally the next day).
We are all shaped by our experiences. I agree, let’s not forget humanity as we sing. Try and find some time away from MS too, for the good of yourself and MS.”…..