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Prof G

Professor of Neurology, Barts & The London. MS & Preventive Neurology thinker, blogger, runner, vegetable gardener, husband, father, cook and wine & food lover.

10 comments

    • Where is this information coming from if it is not from a government source be cautious the message was clear yesterday from the prime minister there was no mention of regional variation

  • I currently take Gylenia for MS also have colitis and in past ITP and I am on long term antibiotics for recurrent kidney infections should I be sheilding in UK for 12 weeks. There is conflicting information depending on what area of country you are in.

    • Every one should be shielding for 12 weeks unless you have essential function or are traveling to work and then you need to ask is this necessary. Check out government website for latest advice

      • It’s not clear at all from government – a lot of confusion in our support groups, relating to whether people need to stay at home EXCEPT FOR getting food, meds, 1 piece of exercise per day (= increased risk subgroup of the vulnerable group) VS. SHIELDING which means you don’t leave your house EVER, just open the windows, must not go to get essential food and meds etc. (the other subgroup called ‘extreme risk’).

        Looks like you only technically qualify for Statutory sick pay if you are in the ‘extreme risk’ (shielding) group.

        According to the MS Society page, cladribine, Lemtrada and HSCT automatically qualify you for the extreme risk subgroup of vulnerable.

        Whether or not other DMDs put you into the ‘increased risk’ subcategory, or ‘extreme risk’ category: there is no specific guidance, just whether or not you get the NHS text, or whether or not your MS team tell you to self-isolate.

        Without this, we can’t insist we are in the ‘extreme risk’ category and get an isolation note so that our employers support us and we can get SSP.

  • Seeing this video from Kurtzgezagt about the COVID-19 https://www.youtube.com/watch?v=BtN-goy9VOY made me think of the viral hypothesis in MS. They say that most of the damages are done by the immune system made crazy by the virus. Would you think that something similar happens in MS (in this case the lung would be the nervous system)?

      • I remember reading on this blog people convinced by the virus hypothesis (notably because of a patient mistreated for HIV who saw her MS symptoms relieved). I even gave money for a crowd-a-cure campaign. You had really good arguments for this hypothesis. Did you stop following this lead?

      • You never heard of the Temelimab? Geneuro a swiss group found an antibody against HERV that may work in MS. I think they are doing phase III test in northern Europe, these studies are essentially paid by Merck and Novartis. Shouldn’t you be aware of that?

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