Heads up! To all with MS, on immunotherapies, heading to the Excel Centre in London for your 2nd jab… As soon as you arrive tell a staff member so you will get taken to the front of the line… and not have to wait for ages.
I think where every you go, do the same.
This advice from Rachel has been confirmed by Sarah (Both Blog Readers). Thanks to them for that.
Spread the word by your social media channels as not every one reads the blog…don’t understand why:-)
I believe over 300 people from BartsHealth have been vaccinated to far, others may have had the Jab via their GPs
Please also continue to tell us about your experiences.
We know that the vaccines can induce fever and temperature increases can cause the Uthoffs phenomenon (nerves dont fire as well in heat). This may happen in people with MS and should be transient
According to the trial studies the reactogenicity issue….which is the response to the Jab, like fever and headache, fatigue arm ache…..is apparently less likely on the second Astrazeneca Jab (don’t understand why, but trials on this were small and fever occurred after second jab in about 20% of cases and it was only mildly reduced by paracetamol), but more likely for the Pfizer and the Moderna Jabs…
In addition the good news for the Amercian readers is that your third vaccine, the Johnson & Johnson vaccine has been approved bu the FDA. This is a one-off Jab so no need to worry about the second one. For those in the UK this should arrive soon. Perfect for the Youth who will be getting the vaccine later in the programme and will help the UK get done and dusted
At BartsHealth we have been testing a two dose schedule of the Johnson & Johnson Jab….I volunteered for the trial…but never got a call…I guess I must be considered to have been too high risk to get on the trial.
I must admit I would want me on the trial because as soon as I was offered the Jab I would be off like a shot. Also within a few weeks of getting anything, I would have tested myself to know if I had got placebo, which I suspect you can guess because of reactogenicity (There wouldn’t be any as they are using saline, that is why in some of oxford trials they gave you vaccination of something else). The deal was they were recruiting 6,000 people in the UK (400-600 from East London) and 3,000 people would get placebo. They said that these people could drop out to get the jab if offered one. You would be mad to recruit too many people like me (I gave my risk factors when I signed up). Because if you lose your placebo arm the trial fails. I would get offer the jab by end of March as I’m in the top 1-9 tiers.
This is now the problem for anyone wanting to develop a new vaccine it will be difficult to do placebo controlled trials in thousands of people. This is one of the reasons why the UK has set up a challenge trial centre. This is in London. Rather than vaccinate 30,000 people and spend 6 months doing this to get 150 people (18-30years old) infected, you can donate some cash to 150 individuals (they get paid for this) and you could do it all in a month. This will be important as it has already been hinted by the UK government that a booster may be needed