Barts-MS rose-tinted-odometer: zero-★s (seeing red)
After my blog post on potentially curing MS, I have been criticised by several people in the MS community for using the C-word. Do you agree? Have I raised false hopes?
I am of the opinion that unless we define what an MS cure looks like and then look for it we will never find it; i.e. the holy grail will always elude us. Another factor is that if we are really curing some people with MS with IRTs (immune reconstitution therapies) shouldn’t the MS community know about it? Wouldn’t that shift the risk:benefit ratio in favour of the benefits? Just maybe more people will choose to be treated with AHSCT, alemtuzumab or cladribine if there was a small chance of a cure. One commentator has suggested I use the term long-term remission rather than cure. The problem with long-term remission is that it doesn’t quite have the same emotional impact as a cure.
One of my patients with both MS and breast cancer was bowled over by her breast cancer consultant who said to her, “we have an 80% chance of curing you of your breast cancer”. Saying “we have an 80% chance of putting your breast cancer into long-term remission”, just doesn’t quite cut the mustard.
If you have the time can you please respond to this three-question survey, which will take you literally 15 seconds to complete? Thank you.
General Disclaimer: Please note that the opinions expressed here are those of Professor Giovannoni and do not necessarily reflect the positions of the Barts and The London School of Medicine and Dentistry nor Barts Health NHS Trust.