Elon Musk has not been able to reach Mars yet but we have been able to officially launch the ‘DMT tool’ on the clinicspeak website! On April 29th, we invited all readers of The MS blog to share their opinions about our ‘DMT tool’. This online web tool was designed to help pwMS select a disease-modifying treatment that matches with their lifestyle and is fit for the literal and figurative long run. We got super valuable input from 82 individuals that have all been reviewed and discussed among the Barts-MS team, and resulted in the following changes:
- We changed the order of the factors queried in the survey on page 1. Prevention of relapses and long-term disability are now rightfully on the first and second spot of the survey.
- We understood from your comments that delivery method (i.e. whether a drug is delivered orally, subcutaneously or intravenously) is a dealbreaker for many individuals and cannot be rated as ‘Important’ or ‘Unimportant’. However, some of our most effective treatments can only be ‘delivered’ in one specific way. As we would like the DMT tool to give pwMS an overview of ALL their treatment options, we will not ask you anymore to rate delivery method in the initial survey. Alternatively, we have indicated now much more clearly on the results page how each of the different DMT’s is administered. This allows you to evaluate what you would lose or gain by prioritising oral drugs for example.
- The results page is generated based on a weighted average method taking into account the degree of importance you attributed to the different treatment factors queried in the survey on page 1. As this was not clear to many of you, we indicated our methods now shortly below the results.
- As many people indicated they would like us to add more information about adverse effects, we have now linked our tool to the MS Trust website which provides up-to-date and palpable information on all MS treatments.
- We included a button to export your results. This allows you to review the results without having to fill out the survey again, and ideally: to print the results and bring them with you on your next clinic appointment with your MS specialist nurse or consultant.
Thank you all for sharing your DMT tool user experience. This helped us getting rid of our cognitive biases and create a user-friendly, accessible tool that is now much closer to achieving its ultimate goal: empowering pwMS to make a rational choice about their MS treatment incorporating lifestyle, personal and professional ambitions. We hope you are equally enthusiastic about this new version, and please share the link, spread the word and let us know what’s your experience when using the tool!
Disclaimer: Please note that the opinions expressed here are those of dr. Ide Smets and do not necessarily reflect the position of the Barts and The London School of Medicine and Dentistry nor Barts Health NHS Trust.