Probiotics survey is inconclusive

P

As promised the following are the recent result from the probiotics survey.

Forms response chart. Question title: Are you taking a probiotic?. Number of responses: 44 responses.

Forms response chart. Question title: Who recommended the probiotic?. Number of responses: 16 responses.

Forms response chart. Question title: How effective have probiotics been in helping your MS?. Number of responses: 15 responses.

I think there are too few respondents to make any judgement on this data. Probiotics and microbiome are clearly hot topics and hence we will at some stage need to generate good evidence to make some sensible recommendations to pwMS. At the moment I don’t think there is enough evidence to recommend pwMS take probiotics. I would suggest using the money you save on purchasing probiotics on doing exercise; at least for exercise, we have an emerging MS database showing that it works.

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General Disclaimer: Please note that the opinions expressed here are those of Professor Giovannoni and do not necessarily reflect the positions of the Barts and The London School of Medicine and Dentistry nor Barts Health NHS Trust and are not meant to be interpreted as personal clinical advice. 

Survey Disclaimer: No personal identifiers will be collected as part of these surveys unless otherwise stated. By completing these surveys you are consenting to the data you provide being analysed by Professor Giovannoni and his collaborators. Res

About the author

Prof G

Professor of Neurology, Barts & The London. MS & Preventive Neurology thinker, blogger, runner, vegetable gardener, husband, father, cook and wine & food lover.

7 comments

  • I’m not a doctor and did not study for this topic.

    I strongly believe in the microbiome stuff. I always get updates from the gastro neuro’s too and the gutbacteria are real important.

    My info is that probiotica don’t reach the bowel, because they won’t pass the stomach because of the acid. To me that doesn’t sound strange.

    I could be wrong, but I think I’m not.

    I believe that a proper healthy diet keeps my gutbacteria happy.

    – no alcohol/drugs (other than meds)
    – intermitted fasting
    – lots of veggies
    – fruits (not too much because of sugars)
    – low on carbs
    – some dairy
    – proper meat, no supermarket crap
    – and variation

    My gutbacteria never complain, Knock on wood

  • What’s the best exercise based on the database ?

    I appreciate there are nuances depending on someone’s level of disability.

    If someone has very minor to none, does the evidence point towards Aerobic versus anaerobic ? Combo? Weights?

    All of the above?

    With work I sometimes struggle to make time to do full on exercise, but I aim to walk at least the daily 10,000 steps, which is enough to get me to a pretty good sweat. I tend to do it in a number of bursts but can manage it in one go if I have the time.

    We arent all running machines 😉 how’s the recovery?

  • Can’t understand the obsession with probiotics. Gut microbes come from diet, what a person eats / doesn’t eat. Certainly vital. We wouldn’t have evolved at all without microbes. E.g. even mitochondria came into being as microbes being enveloped by cells. However, I’m not expecting dietary advice from the schools of medicine and pill popping.

  • What should be made of this (in your opinion), released Aug 11 and referred to in an MS “News” source as “Probiotics Likely To Be of Help With RRMS, Meta-analysis Finds”,? Still better, in your opinion, to spend my $ on something else?

    “Effect of probiotics supplementation on disease progression, depression, general health, and anthropometric measurements in relapsing-remitting multiple sclerosis patients: A systematic review and meta-analysis of clinical trials” (https://onlinelibrary.wiley.com/doi/10.1111/ijcp.14724)
    Concluding Statement- “Our findings revealed that probiotics supplementation can improve disease progression, suppress depression, and general health in MS patients; although, further investigations may be needed.”

    I’m always open to trying something that might lead to fruition, if it doesn’t appear risky, and especially, if it’s currently on the research burner elsewhere and is readily available at not too an exorbitant price. For example, I did Biotin for 4 months until the phase 3 trial put the K-bosh on it. I follow the Swank diet most of the time, and it seems like I am always close to fasting. And while the purpose of my Simvastatin is cholesterol (and my #’s are good), I’m on half the experimental MS dose and staying on it, so I’m hoping for a + “nudge” from that one too. So after seeing the above Probiotic headline and source of the study, I thought “why not”? I’m an x-interferon-1b guy (25 years, did well), with a short stint on Ocrevus until the pandemic put the K-bosh on that one too.

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