Educating/Empowering MS patients
Every five minutes someone, somewhere in the world, is diagnosed with multiple sclerosis – joining the 2.8 million people already living with it.
What they soon discover is MS is a fiendishly complex disease. No two people have the same disease course or symptoms – nor do they respond to drug treatments in a similar way.
They also find – in the lengthy periods between clinic visits – it can be difficult to find accurate and accessible information about how best to manage their MS – so they can live their fullest life possible with the disease.
Which is why Prof G launched the MS-Selfie three months ago…
WHAT: an online newsletter for people with MS that covers issues surrounding the disease – from starting/switching disease-modifying therapies (DMTs) through to advice on symptoms/side effects – with the aim of empowering and educating each person to self-manage their MS.
WHO: Prof Giovannoni is one of the world’s leading experts in MS. He has treated MS patients for more than three decades, regularly lectures internationally on the subject and was part of the team that developed one of the first oral disease-modifying treatments for the disease.
WHEN: once or twice a week a new edition lands in your e-mail inbox.
HOW MUCH: Free – unless you want access to the personal but anonymised case studies and opinions ($9.99/month or $99/year). This fee will be used to administer and curate the associated microsite. If you can’t afford this, please contact Prof G via email (firstname.lastname@example.org) and he can arrange for it to be complimentary.
WHY: to educate and empower people with MS.
Because being your own MS advocate is best…