Dear Dr Giovannoni,
I am so sorry to hear about the unfortunate accident you had a year ago. I hope your health is heading in the right direction. I read with a lot of interest your article reflecting on healthcare in England after your personal experience. https://gavingiovannoni.medium.com/rethinking-healthcare-53068cccfb97.
I thought about sharing the video below with you. It describes the care of patients with MS and advanced disability in the US. From A to Z (including lyrics, production, pre-and post-), this video was conceived and executed by a seasoned provider and colleague, Dr. Healey. I have enjoyed working with Kathi for 13 years and have learned tremendously from her knowledge and wisdom.
I have attached the link to the video:
In one AAN meeting years ago, I remember you stopping by her poster describing a unique program, MAHA Program, that she spearheaded (https://www.nebraskamed.com/neurological-care/multiple-sclerosis/empowering-individuals-with-ms-and-disability), serving to empower patients with advanced disabilities due to MS. As a seasoned provider with MS care for 23 years, Kathi correctly identified the challenges that individuals with a progressive disability have to go through to navigate the fragmented healthcare system in our part of the world.
After your unfortunate accident, I am pretty confident that you will use your own experience as a patient navigating NHS and your researcher mind to create a better world for your patients.
Rana K. Zabad, MD, FAAN
Chief, Multiple Sclerosis/Neuroimmunology Section
Program Director, Multiple Sclerosis Fellowship
University of Nebraska Medical Center
988440 Nebraska Medical Center
Omaha, NE, 68198-8440