I’ve been in touch with the Ukrainian Community of people with Multiple Sclerosis (UCMS). According to their own data, there are 22,000 people with MS living in Ukraine. The UCMS is an associate member of the European MS Platform (EMSP), which sounds frighteningly similar to other “associate memberships” of this large country…
Kateryna from the UCMS just sent me the two videos below. She told me these were made to explain MS to a public audience (video 1) and the importance of medical treatment (video 2) since, in Kateryna’s words: “MS is a disease, where people don’t want to use traditional medicine or not use it regularly”.
Unfortunately, I don’t speak Ukranian, and there are no subtitles. Anybody able and willing to insert subtitles, please drop me a line.
The major problem at this time Kateryna describes is – apart from the terrifying experience of the Russian invasion shared by all Ukrainians – access to clinics and hospitals. She writes: “Our patients now in horrible situation. The big problem is not that we haven’t any medicines, but distributors are afraid to go with them to the hospitals. People need also psychological support and visits to doctors (the majority of doctors now are suffering, as the other people, and not in [their normal place of] work)”.
Disclaimer: The opinions expressed here are those of the author and nobody else.