AuthorThe MS Bloggger

Are you a Gunner’s supporter?

If you have MS and want to #GetVaccinatedASAP and have yet to be allocated a booking for a vaccine you can have the first dose of the Pfizer-BionTech mRNA COVID-19 vaccine and have a tour of the Emirate’s stadium, which is home to, arguably the most famous London football club Arsenal FC, also known as the Gunners. Click here to sign-up, places are limited.

Gunner-get-jabbed-DIGITAL-FLYER

Congratulations to Professor Alan Thompson

The MS-Blog would like to congratulate Professor Alan Thompson on receiving the MSIF’s 2021 Charcot Award. Professor Alan Thompson is Dean of the Faculty of Brain Sciences at UCL in the UK and a well-known MS researcher. The Charcot Award recognises a lifetime of achievement in outstanding research into understanding and treating MS. Congratulations!

WHAT REALLY AFFECTS QUALITY OF LIFE IN MS?

Results from the Trajectories of Outcome in Neurological Conditions (TONiC) study in MS have just been published – “Quality of life in multiple sclerosis is dominated by fatigue, disability and self-efficacy”. If you want to read and keep a copy of the paper, until 1 July 2021 you can read or download it for free from this, link without any need to register or pay (thank you to Journal of...

Can rheumatologists stop causing demyelinating disease?

Hello, I am Charalambos Hadjicharalambous, a medical student at Barts and the London School of Medicine and Dentistry working with Dr Gnanapavan (aka NDG) and Prof Baker (aka Mouse Doctor). In my spare time during the COVID-19 pandemic, I have been helping the BartsMS team with their COVID-19 studies. I am writing here to discuss an article that we’ve written detailing a potential rare link...

The big-D (DMTs) instead of the big-C.

First the symptoms, then the diagnosis, then the therapy discussion. Clinicians and patients with MS are constantly facing dilemmas and challenges with a dose of fear. Common questions that concern the DMTs are: Could these drugs be as harmful as efficient? Given that these drugs affect the immune system in various ways, could severe adverse events such as cancer occur? Our recent analysis...

Patient involvement, or not

Where is the patient involvement in designing the DMT guidelines for Multiple Sclerosis? According to the NHS: ‘People and communities are important to us because they help us improve all aspects of health care, including patient safety, patient experience and health outcomes – giving people the power to live healthier lives.’   The NHS England algorithm for using DMT’s says: ‘The...

Help us understand more about medication adherence in MS

Taking your meds on schedule can be a challenge for people with MS. This is true of all people living with a chronic disease, but it might be particularly hard for PwMS. This could be because MS is a very long disease requiring medication over many years. There is also a lot of uncertainty and it can be tough to be reminded about MS every time you take your meds. As you know, if meds are not...

The MS-Blog

You may or may not have noticed that the name of the blog has changed; it is now called ‘The MS-Blog’. The MS-Blog is now the digital equivalent of Speaker’s Corner in Hyde Park. Every blogger allowed or invited onto the platform uses their own soapbox to stand on and they can say what they want. However, they need to be aware that if they get prosecuted for anything they write or...

Guest-post from an ocrelizumaber

I uploaded a video to theMSguide.com a few days ago talking about my concerns as an ocrelizumab patient and how the potential lack of Covid vaccine response stood to impact my life. I am five full infusions into this DMT and the fact that it appears to severely impact the ability to generate a meaningful immune response after a Covid-19 jab is administered is no fault of anybody or anything. It...

#MSCOVID19 Astrazeneca Vaccine and Blood Clot information

Here are some links to information about the Astrazeneca vaccine and small risk of blood clotting, which have just gone live. Hopefully these will help with your questions. Press release MHRA issues new advice, concluding a possible link between COVID-19 Vaccine AstraZeneca and extremely rare, unlikely to occur blood clots – GOV.UKThe benefits of vaccination continue to outweigh any risks...

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