Today we have a post by Mark Baker and Lavinia Austerschmidt (Blizard Institute Queen Mary University of London) As you may know transport of sodium ions into nerves is a key mechanisms that allows nerves to transmit nerve impulses or action potentials. The action potential is the result of ions moving in and out of the cell. Specifically, it involves potassium (K+) and sodium (Na+) ions. The...
Disclosure
Disclosure seems to be the theme of many MS strands at the moment, so I thought I’d add my two-penn’orth. My only advantage is greater hindsight as I was diagnosed with MS 28y ago. More than half my life has been lived with the diagnosis and it is fair to say that it has influenced every single aspect of my life. Recently, I started to reflect on what that has meant. Some insights are very...
PRISMS: empowered education for people with MS, by people with MS
At last, pwMS are being empowered to design and host their own medical education and most importantly to participate in the events. Is this the beginning of a new era of patient-led MS education? It is not too late to register.
This webinar is about how COVID-19 has affected the management of your MS.
PLEASE REGISTER
CoI: multiple
Are you a Gunner’s supporter?
If you have MS and want to #GetVaccinatedASAP and have yet to be allocated a booking for a vaccine you can have the first dose of the Pfizer-BionTech mRNA COVID-19 vaccine and have a tour of the Emirate’s stadium, which is home to, arguably the most famous London football club Arsenal FC, also known as the Gunners. Click here to sign-up, places are limited.
Gunner-get-jabbed-DIGITAL-FLYER
Congratulations to Professor Alan Thompson
The MS-Blog would like to congratulate Professor Alan Thompson on receiving the MSIF’s 2021 Charcot Award. Professor Alan Thompson is Dean of the Faculty of Brain Sciences at UCL in the UK and a well-known MS researcher. The Charcot Award recognises a lifetime of achievement in outstanding research into understanding and treating MS. Congratulations!
WHAT REALLY AFFECTS QUALITY OF LIFE IN MS?
Results from the Trajectories of Outcome in Neurological Conditions (TONiC) study in MS have just been published – “Quality of life in multiple sclerosis is dominated by fatigue, disability and self-efficacy”. If you want to read and keep a copy of the paper, until 1 July 2021 you can read or download it for free from this, link without any need to register or pay (thank you to Journal of...
Can rheumatologists stop causing demyelinating disease?
Hello, I am Charalambos Hadjicharalambous, a medical student at Barts and the London School of Medicine and Dentistry working with Dr Gnanapavan (aka NDG) and Prof Baker (aka Mouse Doctor). In my spare time during the COVID-19 pandemic, I have been helping the BartsMS team with their COVID-19 studies. I am writing here to discuss an article that we’ve written detailing a potential rare link...
The big-D (DMTs) instead of the big-C.
First the symptoms, then the diagnosis, then the therapy discussion. Clinicians and patients with MS are constantly facing dilemmas and challenges with a dose of fear. Common questions that concern the DMTs are: Could these drugs be as harmful as efficient? Given that these drugs affect the immune system in various ways, could severe adverse events such as cancer occur? Our recent analysis...
Patient involvement, or not
Where is the patient involvement in designing the DMT guidelines for Multiple Sclerosis? According to the NHS: ‘People and communities are important to us because they help us improve all aspects of health care, including patient safety, patient experience and health outcomes – giving people the power to live healthier lives.’ The NHS England algorithm for using DMT’s says: ‘The...
Help us understand more about medication adherence in MS
Taking your meds on schedule can be a challenge for people with MS. This is true of all people living with a chronic disease, but it might be particularly hard for PwMS. This could be because MS is a very long disease requiring medication over many years. There is also a lot of uncertainty and it can be tough to be reminded about MS every time you take your meds. As you know, if meds are not...