By Dominic Shadbolt Multiple Sclerosis (MS) is a demyelinating disease therefore a drug that induces remyelination ought to cure it. Pretty obvious. No? Much in the way some people talk about HSCT (Stem Cells) as if they will fix everything with everyone I get the sense that remyelination drugs carry a similar expectation of a cure. In some cases the results may be nothing short of...
My own cannabis experiment
By Patrick Burke I’ve had MS since 1972 and it has had a huge impact on my life. It now affects me in every which way. The wonderful NHS prescribes drugs that will ease my symptoms, so every day I have to take a cocktail of pills. I thought the time had come to look at other solutions, so I decided to do my own cannabis experiment. Over the last ten years the pain, twitches and...
Brain shrinkage
Today Dr Filipa Serrazina from Lisbon in Portugal talking about Brain Shrinkage Brain atrophy in MS: what we know and would like to know in clinical practice Although multiple sclerosis (MS) is known to be mainly an inflammatory demyelinating disease characterized by many areas of white matter lesions, cortical lesions and brain atrophy (or brain shrinkage) have also emerged as new pathological...
It’s Not Cancer? Phew, That’s OK Then.
By Dominic Shadbolt (theMSguide.com) This is a follow-up to an article recently published on the MS Research Blog that you can read here. Like much of life, people like the simple binary explanations. A is bad and B is good. Multiple Sclerosis has been tarred by this need for simplification. Cancer kills, MS doesn’t is the rough equivalent. Now the requirement for understanding the...
Multiple Sclerosis and Migraine
By Dr Saloua Mrabet, Tunis, currently Fellow with BartsMS “Doctor!! Am I having a relapse? Do I need a new MRI? Do I need steroids?” These are some basic questions when your patient with Multiple Sclerosis (PwMS) calls you very anxious after a typical migraine attack. And even more perplexed when you answer “No!! it’s not a relapse”. She adds “But Doctor!! I am really struggling, I’m unable...
Q&A 11 April 2022
It Shouldn’t be like This (But it is)
Dominic Shadbolt () It Shouldn’t Be Like This (But It Is) Go with me on this… Someone finds a funny lump on their testicle or breast so they call the GP to book an appointment and get it checked out. Once the GP has checked it out and is suspicious, the person is catapulted onto a cancer pathway that presumes it is cancer until proven otherwise. This happened to me recently, and in the UK...
Clinical challenges – managing multiple sclerosis during War
By Filipa Serrazina There are 22,000 people with multiple sclerosis (MS) living in Ukraine, according to the Ukrainian Community of people with Multiple Sclerosis (UCMS). Their lives and treatments, as well as the lives of others with long-term health needs, are currently a major challenge. According to United Nations High Commissioner for Refugees (UNHCR), more than 3.5 million people...
The MS register reaches 5000
The U.K. MS Register now has 5,000 linked participants. Why not help them get to 5001 or 2. You can volunteer if you live in the United Kingdom. In the year of its 10th Anniversary, the U.K. MS Register has reached a new milestone. By linking with the Register, 5,000 people with MS are not only providing data directly to the MS Register online, but have also agreed to have their NHS medical...
Saloua Mrabet – 2022 MENACTRIMS fellow
Hello !! I am Saloua Mrabet, the new MENACTRIMS fellow. I am an MSologist from Tunis, Tunisia. I am interested in Multiple Sclerosis and related inflammatory diseases and especially some hot topics in this field: HSCT, highly active DMT, Ethnicity and MS, genetics of MS and Women’s Issues in MS. Happy...