AuthorBartsMSBlog

Raising the bar – 3yr vision

Chair of the ‘MS Service Provision in the UK: Raising the Bar’ steering group, Professor Gavin Giovannoni, sets out a succinct vision for the national initiative over the coming three years.  Background  Why should someone with MS who lives in place B get a different service to someone who lives in place A? I have argued that variance, when it comes to the provision of healthcare...

MS Masterclass 2019

Are you a trainee in neurology? You may be interested in attending the 2019 Masterclass for Specialist Trainees with a focus on multiple sclerosis, July 19th at the London Paddington Hilton, 146 Praed Street, London W2 1EE, United Kingdom.

Thank you

Dr Antonio ScalafariConsultant Neurologist, Imperial College Healthcare NHS Trust

Guest-post: MS mindset

Many people with MS experience cognitive difficulties (poor concentration, trouble remembering, “cog fog”…). We know quite a bit about how these difficulties play out on formal tests that psychologists use. But we are less good at understanding the experience of people with MS with cognitive difficulties. There are a number of questionnaires that report cognitive difficulties that have been...

Guest post: All Aboard…for your DPRC

Have MS? You are entitled to a Disabled Persons Railcard. End of discussion. If you don’t want to read how or why I know this then just apply here. Explain that you have MS, enclose proof and voila. For £54 over 3 years you and one other enjoy 30% off rail fares at all times. The background to this follows: Being the sort of person that does not like unequal treatment nor the illogicality of...

Guest post: Social Prescribing – the first exploratory meeting.

Dr Saul Reyes, a neurologist from Colombia, is working with the Barts MS team for a year and is exploring the concept of social prescribing and the possibility of incorporating it into the Barts MS service. To kick-start this he spoke to the MS Advisory Group in February earlier this year. He then set up a meeting with Alyson McGregor the National Director of an organization called Altogether...

Guest post: Part four of choosing a DMT

When in the police, many years ago, I went into some shocking situations. As a middle-class lad I often struggled to even understand how people could live like this. You’d never know it from external appearances with many people. If you want to gain confidence you rapidly learn to communicate at an entirely different level and understand the huge differences in interpretation of information and...

Guest post: Social capital and social prescribing

I was having a chat with a friend a few days ago. He said “I have heard people talking about social capital and social prescribing. I don’t really know what they mean, do you?” “Umm, not too easy”, I said. “I know it’s nothing to do with money, it’s not measurable and it’s all to do with your quality of life”. “Sounds interesting”! He wanted to know more but I could not really help him right then...

Guest post: Part three of choosing a DMT: Understanding risk

DMTs carry a much higher degree of risk than nothing at all and the reality of MS means that attitudes towards risk need adjusting. It is fine to come into the scenario assessing things in a pre-diagnosis manner, that is understandable. A patient needs educating about the whole post-diagnosis scenario now. The lens through which risk, regarding treatments, has changed. From the risks of opting...

Guest post: Part 2 of Choosing a DMT: the issues

Firstly, why the incredible hesitancy among some medics to flip the pyramid? Or at least break away from the Beta-interferons/Glatiramer Acetate as ‘safe’ fallback options, even when the research suggests that these days, the older first generation drugs give suboptimal outcomes compared to the modern crop. The MS neurologists that I spoke to all advocate versions of outlining the options...

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