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Raising the Bar

You may recall last year the MS Academy held a meeting to address variance in the provision of MS services in the NHS. This meeting was very well received and several follow-on initiatives have been triggered as a result of the meeting. The MS Academy is now hosting a follow-on meeting called ‘MS Service Provision in the UK 2019: Raising the Bar‘. If you want to read about what...

Guest post: A patient’s point of view: choosing a DMT

This is a four-part post, where you’ll read about the experiences of newly diagnosed MS patients, plus my observations, with links to a some of the research underpinning them. The objective is to address some hidden and often difficult-to-address issues that come up when prescribing a DMT to a newly diagnosed patient. As a pwMS of 26y post-diagnosis in the UK, having worked in pharma, IT...

Health Vault: a failed experiment

Microsoft’s HealthVault promised to revolutionise the way medicine was done. The fact they are closing it down tells a story. Not enough vision and commitment. Very disappointing. Maybe the MS Brain Health consortium will do a better job with MS-Connect. What do you think? IMPORTANT NOTICE ABOUT YOUR MICROSOFT HEALTHVAULT SERVICE Microsoft HealthVault service to end November 20, 2019 This...

Does alemtuzumab treatment increase your chances of having a miscarriage or premature birth? A large systematic review of numerous studies involving women with ‘normal thyroid function’ showed a strong association between the presence of anti-thyroid peroxidase antibodies and having a miscarriage and/or premature birth, i.e. the chances were increased by approximately 3.9x and 2.1x, respectively...

April Fool: Prof G to retire August 2019

This post launched on the 1st of April was an April’s fools prank. It is with great sadness that we announce Prof G will be leaving Barts-MS later this year. He is turning 55 this year, the earliest official retirement age if you work in the NHS. ‘Burnt-out at 55‘ is how he describes his life. So he and his wife have decided to decant from London to the South Coast of England...

Calling all male MSers

Do men with MS deserve to be offered higher efficacy DMTs earlier than women? When you do a baseline prognostic profile of someone with MS, being female is a good prognostic factor compared to being a male. Men have a worse outcome. This study below shows men do worse when it comes to poor cognition compared to women (#ThinkCognition). The question of why women do better cognitively may relate to...

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