AuthorRachel Horne

Ich Klage An

When the Nazis used MS to support killing the disabled By Rachel Horne More than seventy years after the end of WWII, about forty Nazi propaganda films still remain banned by the Allies in Germany – due to their incendiary nature. One of the most notorious of these is Ich Klage An or I Accuse, which tells the story of a young woman who gets multiple sclerosis and convinces her husband to...

“Useless Lives” – the Dark Story of MS and the Nazis

At the start of the UK Disability History Month, let us not forget… By Rachel Horne I never thought I would end up writing the words Nazi and multiple sclerosis in the same sentence.  Then I went to Auschwitz.  After passing under the infamous Arbeit Macht Frei “Work Sets You Free” gate, our group followed the tour guide into Block 5. There inside the dim, low-ceilinged room, I was...

Identity

MS and identity. We know what MS does to us physically – but what about to our self? Receiving a diagnosis of multiple sclerosis is devastating. Full stop. The disease course is varied and unpredictable – and we humans we don’t like uncertainty. There is no cure; medical treatment is limited and the symptoms are wide and diverse. In addition, the onset of MS often occurs in young...

e-Bikes and MS

It’s Bike Week. Here’s how I got back in the saddle again… with an e-bike I’ve never worn lycra nor “chewed the handlebars,” but when I stopped cycling six years ago because of MS, I missed it. So how did I manage to go on a cycling break last month? Earlier this year, a good friend called and said she was planning to get a bunch of people together to go cycling for a few days in the Loire in...

International Women’s Day

Today I’m standing for women – and, in particular, actress Selma Blair Until very recently, there has never been a celebrity who has shown us what it is truly like to have multiple sclerosis – warts and all. In the past, talk-show host Montel Williams and reality show star Jack Osbourne have disclosed they have the disease, but the image they show to the world has been carefully...

The Barancik MS Prize

An interview with philanthropists Charles and Margery Barancik. “Through our family foundation we deal with many issues, but our soul is in this one.” On Thursday leading neuroscientist Katerina Akassoglou will take to the stage to speak about her work investigating the blood-brain barrier when she receives the Barancik Prize for Innovation in MS Research at the Americas Committee for Treatment...

MSexism 4: The gender pay gap

The gender pay gap is alive and thriving in neurology. That’s not only bad for women MS experts, but for all of us with the disease. One of my best moments of 2018 came at the end of a Thursday afternoon at the ECTRIMS October conference when dozens of women MS clinicians and scientists crowded into a room – and launched the International Women in Multiple Sclerosis group. Their aim is to...

Guest post: MSexism 3 – gender bias in the MS community

Women experts launch a call to action to end gender bias in the MS community. More than one hundred female academic neurologists and neuroscientists worldwide have called on pharmaceutical companies, MS conference organisers and journal editorial boards to make changes to achieve greater gender equality.  In a Letter to the Editor published online last week in the Annals of Neurology, the...

Guest Post: MS and Alcohol: Friend or Foe? Prof G responds… as do MSers

By now, we all know the lifestyle drill. Exercise = good Smoking = bad Alcohol = possibly, maybe? As if this wasn’t confusing enough, the last month has seen the publication of differing advice on alcohol. Public Health England announced that drinkers should aim for two consecutive alcohol-free days a week to reduce health problems and improve well-being. While a massive worldwide study –...

MSexism take two: The Mystery of the Missing Authors

Recently this blog featured an eye-opening article written by our guest blogger Rachel, about gender inequality in the world of multiple sclerosis, from a patient’s point of view. It’s well worth a read. She also outlines just how few women feature on academic panels. And this investigation has now been taken further, with an analysis of authors on academic papers. This post is a rewriting of an...

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