The MS-Blog Advisory Group is a group of people with MS who meet regularly to discuss research activities and service provided by the Barts-MS team.
The MS Blog Advisory Group is:
- A liaison between patients, clinicians and researchers
- A group of engaged patients who monitor what the Barts MS Research Team is doing and check that the team’s work is centred around patients’ needs
- A meeting of like-minded people with a common interest (but also different people from different backgrounds)
- A forum of ideas – bringing together what clinicians want to achieve but adding the patient perspective
- A direct way for the patient voice to be heard by clinicians and researchers
What does the MS Blog Advisory Group do?
- Review and inform the design of study information
- Impact, change and improve the design of the blog
- Discuss issues of concern to patients and bring these to the attention of the clinical team
- Initiate the development of clinic service information
- Develop content, format and design of events such as the MS Research Day
- Test information resources to ensure they are patient-focused, usable and interesting
The group has been involved in the development of award-winning information resources used within the Barts-MS service and are continually contributing to the design and development of new resources.
If there is an issue relating to the research activities of the Barts-MS team or the MS clinical service at The Royal London Hospital and you would like the advisory group to discuss this then please email email@example.com with the subject title: FAO Barts MS Advisory Group
The group will write up each of their meetings and post a description of what was discussed on this blog.
The group has been meeting since September 2014 and is organised by Alison Thomson. Since July 2015, the group’s meetings have been very kindly funded by the Centre for Public Engagement at Queen Mary, University of London. This covers travel and refreshments.
Contact us to find out more about the group.