CategoryLifestyle and self-management

Ask your GP

Should we expect your GP or family doctor to take on more of the day-2-day management of your MS? In the UK specialist physicians are called consultants because there was always too few of them to get their hands dirty with the day-to-day management of patients with special medical problems. General practitioners used to refer their patients to a specialist for a ‘consultation’ and...

Menopause

Is it MS or the menopause? “I am a woman with MS and have started going through the menopause. My last menstrual period was four months ago and have frequent hot flushes. All of a sudden my MS seems to have worsened. I am more fatigued, my sleep is disrupted, my bladder problems are worse, my mood is all over the place and my walking has deteriorated. Is this my MS or is simply the menopause? “...

Resetting the work compass

Medical retirement hit me instantaneously; suddenly I knew the time had arrived. My old friend multiple sclerosis had boxed me into a corner. I had spent the last 15 years working as an international contract analyst programmer travelling all over the world. I had SPMS but retirement at 58 was not on my horizon. I had discovered methods to cope with the problem of MS but my OOMPH was definitely...

American Military show that MS starts years before it shows itself

Migration data suggests that people contract the MS trigger before the aga of 15 but we know from clinical studies that it often doesn’t show itself for years later. However it appears that this grumbles on for many years before it rears its ugly head. The American Mitltary is a big beast full of healthy young people who get good medical check-ups. They have their bloods taken and stored...

#ThinkSocial – work, work, work

The following is an excerpt from the executive summary of ‘Health and Work Champions: a Pilot Training Programme’, (Martin et al. Feb 2018).  I am highlighting it because it has relevance to MSers and MS-related HCPs. HCPs are being fingered as part of the unemployment problem; “healthcare practitioners, who may consider that giving advice to refrain from work is part of...

Guest post: Losing and resetting my identity

Rachel Horne wrote a guest post on 15 July called Identity. I think just about everyone who has had MS will have gone through at least one personal crisis and hopefully come out the other end. This is my personal crisis story or losing and regaining my identity and written with the benefit of hindsight. Diagnosis I was diagnosed in 1995 with RRMS. In those days the mobile phone was similar to a...

Double-whammy

Sleep glorious sleep! Walking, or sleeping, the talk. Over the last two years, I have tried to increase the duration and quality of my sleep. On reflection, it seems to be working for me. I feel so much better for it. It is now clear that shift work, reduced sleep and poor quality sleep are risk factors for developing dementia. We need to maximise my chances of not developing dementia. Sleep is...

Sugar crash

My recent blog post on food coma (14-Jan-2019) not only uncovered another hidden symptom in MSers but has led us to start exploring this phenomenon in our patients and, hopefully, to some evidence-based advice on how to manage the problem.  In our short web survey on food coma, I was surprised to find that 86% of MSers report this phenomenon with 28 of the 81 respondents (35%) reporting their...

Identity

MS and identity. We know what MS does to us physically – but what about to our self? Receiving a diagnosis of multiple sclerosis is devastating. Full stop. The disease course is varied and unpredictable – and we humans we don’t like uncertainty. There is no cure; medical treatment is limited and the symptoms are wide and diverse. In addition, the onset of MS often occurs in young...

25 years

I mentioned in a comment yesterday that “MS is unrecognisable to what it was 25 years ago. It is all about early diagnosis and early effective treatment; if you miss out on these it is not good news”. In response, a commentator said “what it really was 25 years ago … and what you remember are going to be different” and “if someone has PPMS …. it’s not”.  This commentator is wrong on both...

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