CategoryLifestyle and self-management

How is Prof G doing?

Barts-MS rose-tinted-odometer: ★★★★★ #UseItOrLoseIt  I am receiving an increasing number of emails and messages via my social media channels asking me for an update on how I am doing.  I am continuing to improve slowly. I still have pain in my pelvis as a result of the fractures I sustained. However, the pain is manageable and I have stopped all my analgesics except a once-daily dose of an...

What has my age got to do with having MS?

Barts-MS rose-tinted-odometer: ★★★ (some readers have asked for this feature to stay) How old are you? It depends. You may be aware that there can be a disconnect between your chronological or actual age and your biological age. As ageing or senescence is a biological process driven by metabolic, genomic and environmental factors you can see how there can be a disconnect between the two. As a...

How healthy is your Brain?

As 2021 rapidly speeds up and COVID-19 leaves its trail of destruction it is clear to see how important general and brain health is for resilience against disease and its broader impact. These lessons go beyond COVID-19 and apply to any disease. This is why our #BrainHealth #TimeMatters campaign is so important for people with MS (pwMS) and the general public and why prehabilitation needs to...

MS Vaccine

The development of COVID-19 and the rapid way that RNA vaccines have been developed means that you have a rapid way of developing vaccines against your viruses of choice. So which virus do you want to get rid off…The ones that cause warts Hope this doesn’t put you off your rice crispies this morning:-) Epstein Barr Virus? Well ProfGs wish is their command, maybe he can convince them...

New study testing an upper limb rehab tool – get involved!

The Barts MS team are running a study, investigating whether a new hand and arm activity called “Under & Over” can improve upper limb function for people with MS. The study is titled: “Under & Over: A controlled study to develop an upper limb rehabilitation tool for people with Multiple Sclerosis.”  This study is now recruiting – find out more information on the...

A time to cry and a time to laugh

Barts-MS rose-tinted-odometer: ★ When I met her for the first time she was in her early fifties. She had had multiple sclerosis for over 20 years. Her family now kept her at home; isolated from the wider world. Her behaviour would embarrass them. Why? She suffered from pathological laughter and occasionally inappropriate crying and her husband and children could not deal with this in public. It...

Unsteadiness

Barts-MS rose-tinted-odometer: ★★★★★ How many of you people who have MS (pwMS) have balance problems; i.e. when you stand and close your eyes or try and stand on one leg you tend to fall?  Since my accident, I have been having problems with balance. I first noticed it when I tried to stand on one leg and I would feel unsteady. When walking to and from the bathroom at night I tend to veer to one...

Gratitude

Barts-MS rose-tinted-odometer: ★★★★★ A problem in modern medical practice is the assumption that there is a pill for everything. The one eye-opener for me after my recent trauma has been how easy it is for medics to reach for the prescription pad. When I was first discharged from hospital I was on 14 different medications. About half of the medications were prescribed to manage or prevent the...

PTSD-2

My recent post on PTSD (post-traumatic stress disorder) and the resulting comments were an eye-opener to me and many of our readers. If you haven’t read the post and the comments I would urge you to do so as it provides context for the following survey we are doing in partnership with Shift.ms a social platform for people with MS. We understand that this survey may be upsetting or...

R-squared

Barts-MS rose-tinted-odometer: ★★★★★ R-squared = resilience x reciprocity Resilience = the capacity to recover quickly from difficulties; toughness. Reciprocity = the practice of exchanging things with others for mutual benefit, especially privileges granted by one country or organization or person to another. Health and wellness can’t be taken for granted. For the body and mind to navigate life...

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