CategoryLifestyle and self-management

Guest post: Losing and resetting my identity

Rachel Horne wrote a guest post on 15 July called Identity. I think just about everyone who has had MS will have gone through at least one personal crisis and hopefully come out the other end. This is my personal crisis story or losing and regaining my identity and written with the benefit of hindsight. Diagnosis I was diagnosed in 1995 with RRMS. In those days the mobile phone was similar to a...

Double-whammy

Sleep glorious sleep! Walking, or sleeping, the talk. Over the last two years, I have tried to increase the duration and quality of my sleep. On reflection, it seems to be working for me. I feel so much better for it. It is now clear that shift work, reduced sleep and poor quality sleep are risk factors for developing dementia. We need to maximise my chances of not developing dementia. Sleep is...

Sugar crash

My recent blog post on food coma (14-Jan-2019) not only uncovered another hidden symptom in MSers but has led us to start exploring this phenomenon in our patients and, hopefully, to some evidence-based advice on how to manage the problem.  In our short web survey on food coma, I was surprised to find that 86% of MSers report this phenomenon with 28 of the 81 respondents (35%) reporting their...

Identity

MS and identity. We know what MS does to us physically – but what about to our self? Receiving a diagnosis of multiple sclerosis is devastating. Full stop. The disease course is varied and unpredictable – and we humans we don’t like uncertainty. There is no cure; medical treatment is limited and the symptoms are wide and diverse. In addition, the onset of MS often occurs in young...

25 years

I mentioned in a comment yesterday that “MS is unrecognisable to what it was 25 years ago. It is all about early diagnosis and early effective treatment; if you miss out on these it is not good news”. In response, a commentator said “what it really was 25 years ago … and what you remember are going to be different” and “if someone has PPMS …. it’s not”.  This commentator is wrong on both...

Unassisted

Let’s talk about death, that is unassisted suicide.  The meta-analysis below, not surprisingly, shows that if you have MS your chances of suicide are about twice the background rate. The risk is particularly high at diagnosis compared to symptom onset. I suspect this latter is an artificial finding; if you commit suicide before you are diagnosed with MS the code ‘multiple sclerosis’ is...

Cubed

How do we colour in each block of this cube? Making a decision about which DMT to prescribe, or preferably to help your patients make a decision, many of my colleagues mix up their priorities. For example, some mix-up baseline prognostic profiling and disease activity, and then some of them throw disease-stage or disability progression into the mix. I think this occurs because these factors are...

Bandwagon

Our microbiomes are clearly very important, but they don’t come close to explaining why you get MS and whether or not one of our microbiomes is causal in MS. Yes, there are multiple microbiomes in and on our bodies. At the moment the attention is all focused on the gut microbiome, in particular, the distal colon. Why? Because it is easy to collect poo samples. But why the colonic microbiome in MS...

Marmite on toast: the social crisis and MS

Recently one of my patients chastised me for telling her off for her poor diet, which consisted mainly of bread. She lives alone, which may explain why she eats so poorly. She has marmite or jam on toast for breakfast, a sandwich for lunch and if she feels hungry another piece of toast for dinner. Interestingly, my mother used to refer to her elderly stepmother as a tea-and-toast lady and I never...

Pregnancy and MS

Pregnancy and Family Planning in Multiple Sclerosis. Langer-Gould AM.Continuum (Minneap Minn). 2019 Jun;25(3):773-792 PURPOSE OF REVIEW: This article provides practical guidance on successful management of women with multiple sclerosis (MS) through pregnancy and the postpartum period. RECENT FINDINGS: Recent studies indicate that most women diagnosed with MS today can have children, breast-feed...

Translate

Categories

Recent Posts

Recent Comments

Archives