CategoryLifestyle and self-management

MS@theLimits 2020

Barts-MS rose-tinted-odometer ★★★ The Barts-MS team is heavily engaged with the 2020 MS@theLimits meeting at the Royal College of Physicians. Two things to note is the gender bias in favour of female speakers. This was in response to criticism about the male dominance at the last MS@theLimits meeting in 2018. I am speaking today about some of my ideas around ‘the real MS’ or...

The war on sugar (more posts below today)

Barts-MS rose-tinted-odometer ★★★  Just back from the NMSS ‘Pathways to Cures’ meeting in Washington DC during which we pledged to  STOP, RESTORE and END multiple sclerosis.  The END refers to prevention. We discussed at the meeting modifiable risk factors that could be tackled to reduce the incidence (new cases) of MS and one risk factor childhood and adolescent obesity. One...

How healthy is your lifestyle?

Barts-MS rose-tinted-odometer ★★★★★  It is a no-brainer. A healthy lifestyle is one of the most effective preventive health interventions available. The study below shows that you can increase your chances, by a factor of over 20, of a life expectancy free of diabetes, cardiovascular diseases, and cancer at age 50 by making ensuring you maintain 4 or 5 low-risk lifestyle factors; i.e. not...

Premature Ageing

One of my colleagues, with whom I was co-authoring an editorial on smouldering MS, demanded I delete the section on premature ageing being a factor driving delayed worsening of disability in people with MS (pwMS). I refused so we had to pull the editorial. The fact that he is quite old and doesn’t like the hypothesis of brain & cognitive reserve being neuroprotective explains his position. He...

Biohacking comes of age

Barts-MS rose-tinted-odometer  ★★ You know something is happening when it gets its own review article in the New England Journal of Medicine. The review article in last weeks issue covers the science and medicine around intermittent fasting (IF) and its effects on health, ageing and disease. The article even includes a few lines on IF and its potential impact on MS.  In my ‘2020 Vision’ post...

Do you have high blood pressure?

Barts-MS rose-tinted-odometer  ★ ★ ★ ★ ★ Who knows their current blood pressure? If you have MS you should know your blood pressure, your BMI (body mass index), your lipid status and whether or not you have impaired glucose tolerance or diabetes. In other words, all pwMS should have an annual health check outside of their MS clinic appointment to be screened for comorbidities. We know that pwMS...

Chicken or Egg?

Rose-tinted-odometer = ★ Brain Health is a major theme of this blog. Why?  We think that to ‘maximise brain health for the life of a person with MS (pwMS)’ we need to manage MS actively and holistically and promote brain-healthy behaviours. The ‘we’ here is not only HCPs but you and society, which includes regulators, politicians, educationalists, pharma, etc.    Another thing...

Apathy, does it affect you?

We all know that MS is a bad disease with a massive socio-economic impact. However, the personal toll is even larger. Reduced life expectancy, higher suicide rates, unemployment, high divorce rates, depression, anxiety, fatigue, substance abuse, cognitive impairment, loneliness, social isolation and poverty are just a few of things that can and do happen to pwMS. One I have not discussed before...

Do you take your pills

Risk Factors for Suboptimal Medication Adherence in Persons with Multiple Sclerosis: Development of an Electronic Health Record-Based Explanatory Model for Disease-Modifying Therapy Use.Gromisch ES, Turner AP, Leipertz SL, Beauvais J, Haselkorn JK. Arch Phys Med Rehabil. 2019 Dec 3. pii: S0003-9993(19)31430-3. OBJECTIVE:To determine which factors are associated with suboptimal disease-modifying...

Sustainable career in MS

Believe it or not, over a life-time an average person spends 3,750 days at work. Work provides income, independence, structure to the day, social interactions, and personal satisfaction from a task well done. Based on published figures the workforce population is aged between 15-64; with 50-64 and 25-34 year olds contributing to the bulk of this (see Figure below). And MS is in the thick of it...

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