CategoryLifestyle and self-management

Sepsis in MS patients and Intensive care admissions

Sepsis (or blood infection) is a dangerous thing. I remember first realising this as a Junior doctor in respiratory medicine, when an audit of pneumonia admissions revealed a mortality of 60%. Sadly, this has not improved by much even with the latest antibiotics. As I rotated through, transplant medicine, haem-oncology, and finally into ICU, I found myself forever pre-occupied with watching the...

How to recover from an MS relapse

A relapse is one scary experience. The tendency of traditional medicine in the past was to advocate bed rest and the patient to adopt a ‘sick role’. The lack of research in this area meant that doctors were left to adopt beliefs that were outdated by modern standards; they truly believed that bed rest during an MS relapse helped with the recovery process. This would make sense if in...

A few cigigies a day doesn’t keep the mouse-MS away

I dont’ report on studies in the Beasties much these days, but this story made me think a few things If you smoke you have an increased chance of developing MS compared to if you don’t smoke. I have to say you are at an increased risk of many other things if you smoke. Is it surprising? Well not really because if the only question you ask in a survey essentially focuses on the...

It Shouldn’t be like This (But it is)

Dominic Shadbolt () It Shouldn’t Be Like This (But It Is) Go with me on this… Someone finds a funny lump on their testicle or breast so they call the GP to book an appointment and get it checked out. Once the GP has checked it out and is suspicious, the person is catapulted onto a cancer pathway that presumes it is cancer until proven otherwise. This happened to me recently, and in the UK...

Loneliness and MS: Could e-health be a Solution?

By Rachel Horne For people with multiple sclerosis, we know this much is true. Dealing with the physical side of the disease is just one part of the struggle. Feeling alone is another. Not only are people with MS significantly more prone to loneliness compared to the general population, but strong evidence shows it also puts our brain health and overall health at risk. It can lead to depression...

Improving MS outcomes: The smoke in our eyes!

Many of you will have registered themselves on the UK MS registry. This is an online registry that aims to monitor the motor, mood and treatment status of pwMS based on what we call patient-reported outcomes or PRO’s. This means that pwMS voluntarily fill out simplified MS questionnaires every 6 months after being prompted by MS email spam of the most honourable kind. Based on the responses of...

DMT tool vs. The Flawed Milky Way

Urbanisation is by and large a good thing, and I wouldn’t want to miss the buzzing environment of people, culture and, last but not least, cuisine for a second. However, it comes with an annoying side effect: more dangerous city streets. Last week, I had to experience this the hard way. Decennia of intelligent road design couldn’t protect me from being hit by a car while going out for a run. How...

Smoking Never too Late to Quit

Rodgers J, Friede T, Vonberg FW, Constantinescu CS, Coles A, Chataway J, Duddy M, Emsley H, Ford H, Fisniku L, Galea I, Harrower T, Hobart J, Huseyin H, Kipps CM, Marta M, McDonnell GV, McLean B, Pearson OR, Rog D, Schmierer K, Sharrack B, Straukiene A, Wilson HC, Ford DV, Middleton RM, Nicholas R; MS Register group. The impact of smoking cessation on multiple sclerosis disease progression. Brain...

MS-Selfie

Educating/Empowering MS patients Every five minutes someone, somewhere in the world, is diagnosed with multiple sclerosis – joining the 2.8 million people already living with it. What they soon discover is MS is a fiendishly complex disease. No two people have the same disease course or symptoms – nor do they respond to drug treatments in a similar way. They also find – in the...

Bowel Dysfunction in MS is Common

As the is more damage in the spinal cord then the innervation between the gut and central nervous sytem becomes damaged to and this may result in bowel dysfunction Prevalence and predictors of bowel dysfunction in a large multiple sclerosis outpatient population: an Italian multicenter study.Alvino B, Arianna F, Assunta B, Antonio C, Emanuele D, Giorgia M, Leonardo S, Daniele S...

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