CategoryNews and events

I’m so sorry

Barts-MS rose-tinted-odometer:  zero-★’s (Black Monday #000000) I heard last week that one of my patients sadly succumbed to COVID-19. This is not the first person with MS to die of COVID-19 but is a reminder of how fickle life can be. I have contacted my patient’s partner to say how sorry I am. The question I am asking myself is; could this death have been prevented? Yes, almost certainly...

triMS.online wins top award

Barts-MS rose-tinted-odometer: ★★★★★★ (A golden 6-star Thursday, #d4af37) The great news, our triMS.online conference won the industry Communiqué Award for ‘Excellence in Global Education Meetings/Stand-Alone Events’  last night. What started as an idea on this blog back in October 2016 became a reality in 2018 and is now hopefully a permanent fixture in the MS calendar. This was a real team...

Olympics Over…Paralympics Begins ProfK gets Gold for Marathon, after crossing the line…the starting line……..First person in!

Every week we get a news letter of Queen Mary in the News….they forget to mention the times when we are on the naughty-list but this week we should celebrate the marthon win for ProfK. He has been running this marathon since about 2012 and has managed to get cladribine trial (ChariotMS) over the line in 2021 and the first person has been recruited to the trial………..only...

MS at the limits 2021

Are you an HCP working in MS? These two meetings – yes they are face-2-face – may interest you. The feedback from the previous three meetings has been the best feedback I have ever seen for an academic MS meeting. More than 98% of attendees said they would definitely attend again, 100% of attendees said they would recommend it to colleagues and friends and the majority said they...

MD Merch

After my post you have asked about the Merch. Although they are all drawn by me, to avoid any copyright claims, e.g. the original felt model was made by the House of Mouse, the merch is used as a gift, so they are limited edition and often bespoke. Believe it or not the T shirt shop that houses all my designs have updated their software due to the down fall of “Flash” and has...

Congratulations to Professor Alan Thompson

The MS-Blog would like to congratulate Professor Alan Thompson on receiving the MSIF’s 2021 Charcot Award. Professor Alan Thompson is Dean of the Faculty of Brain Sciences at UCL in the UK and a well-known MS researcher. The Charcot Award recognises a lifetime of achievement in outstanding research into understanding and treating MS. Congratulations!

Why the name…MD?

This weekend I did a joke that fell abit flat….I suggested that Aaron Booster…..the Amish/Pilgrim Neuro:-) OK maybe not….but look at the the beard and sideburns.(Just realised it is just a beard but different hair colour on the chin)…:-), had joined the fold as ProfK had tweeted about Aaron Boster MD…You may think it is Medical Doctor. But I suggested it said it was...

The MS Blog Update – Your Reponses

This MS Blog has been around since 2009, started by Prof G. But he isn’t in charge of the blog, he is one of many contributors. As of May 2021, there were over 9,200 published posts. Each month, the website sees 50% new and 50% returning visitors, with over 88,000 page views a month. Most readers are from the UK, US, Canada and across Europe.  In April, the blog went through...

NHS Digital. Sharing your Data

“Wanna buy the NHS data…only one previous owner”….Arthur Daley (AKA UK Government) used-car-salesman You Need to Read this Page. The NHS is collecting data from your GP and this could be sold by NHS digital. This collection will occur on July 2021 and you have until 23 June to say whether you agree or not. No action on your part and you agree. To stop your GP doing this...

ChariotMS – we’re rolling !

And we’re off… Almost exactly three years after submitting our outline application to the NIHR-EME, the first site initiation visit of ChariotMS will take place TODAY at my home site, The Royal London Hospital. We are expecting the first of 200 people with advanced MS to enrol in June. And as the remainder of 20 sites across all nations of the UK will open over the next three months...

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