CategoryNews and events

How is Prof G doing?

Barts-MS rose-tinted-odometer: ★★★★★ #UseItOrLoseIt  I am receiving an increasing number of emails and messages via my social media channels asking me for an update on how I am doing.  I am continuing to improve slowly. I still have pain in my pelvis as a result of the fractures I sustained. However, the pain is manageable and I have stopped all my analgesics except a once-daily dose of an...

How healthy is your Brain?

As 2021 rapidly speeds up and COVID-19 leaves its trail of destruction it is clear to see how important general and brain health is for resilience against disease and its broader impact. These lessons go beyond COVID-19 and apply to any disease. This is why our #BrainHealth #TimeMatters campaign is so important for people with MS (pwMS) and the general public and why prehabilitation needs to...

Reflections on 2020 and a quick look forward to 2021

During my physical rehabilitation exercise session yesterday I realised that I have not reflected on the New Year from an MS or personal perspective be it MS research, MS clinical practice or my personal life. I suspect I have been distracted by my injuries and recovery and that the COVID-19 pandemic has pushed the New Year transition into the future. The political mayhem across the world has...

New study testing an upper limb rehab tool – get involved!

The Barts MS team are running a study, investigating whether a new hand and arm activity called “Under & Over” can improve upper limb function for people with MS. The study is titled: “Under & Over: A controlled study to develop an upper limb rehabilitation tool for people with Multiple Sclerosis.”  This study is now recruiting – find out more information on the...

Re Private Healthcare Workers and Carers

There has been a lot of comments on this blog about private carers and private healthcare workers not been eligible for COVID-19 vaccination under the current NHS England vaccine priority system. I have just discovered that government guidelines don’t distinguish between public or private employees. So if you are an active healthcare worker, working in the private sector, you are eligible...

To be vaccinated or not?

The following is a preliminary summary of the UK MS Register’s survey to establish how people with MS (pwMS) viewed the arrival of the COVID-19 vaccinations. Importantly, the data shows that despite being quite vocal the anti-vaccine message doesn’t seem to be having the same effect in the UK as it is in other countries. Fewer than 6% of respondents said they would probably or...

Although this year has been SH1…Hope you have a happy Feastive period with your loved ones….or yourself, if you are a Victim of the BoJo Grinch

Let’s face it…It has been a SH1 year…in more ways than I can explain at the moment. MS-research and our live’s have been put on hold. From the selfish prospective, hopefully ProfG will make a complete recovery after his accident and he will be back in the near future. We have sent him a year’s supply of razors, as it seems he has set the challenge to be ZZ...

Christmas

Barts-MS rose-tinted-odometer: ★ My name is Laura Smith, I am 54 years old and have progressive MS. I am divorced with a grown-up son who is 32 years old and lives with his partner in the North of England. I am medically retired and live alone in a small bungalow in a rural village close to the Essex-Suffolk border. I am disabled and need a stick to walk indoors. I use a wheelchair and/or scooter...

PTSD-2

My recent post on PTSD (post-traumatic stress disorder) and the resulting comments were an eye-opener to me and many of our readers. If you haven’t read the post and the comments I would urge you to do so as it provides context for the following survey we are doing in partnership with Shift.ms a social platform for people with MS. We understand that this survey may be upsetting or...

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