CategoryNews and events

Under&Over: we need your help

Since being hit by a motorbike travelling at high speed and nearly losing my life or independence I now have personal experience of the value of physical neurorehabilitation. When I say #UseItOrLoseIt I really mean it. So if you have more advanced MS and are using a walking stick (EDSS 6.0) we want you to enrol in a #CitizenScience type study in which we are testing a new hand and arm activity...

#MSCOVID19: triMSx-online

You may remember that about 6 years ago the idea was germinated on this blog to launch an online version of ECTRIMS to reach people in low- and middle-income countries and to allow more women with family commitments to attend meetings. The other aim was to usher in the next generation of young MSologists; more women, younger people, more ethnic diversity and from all regions of over the world, i...

Apology to people with MS and the Neurologists who were upset and offended by my post

I write to apologise to anybody who was upset or offended by my recent post on AttackMS, which is in support of a trial of natalizumab in people who likely have MS at the time before their diagnosis. Foolishly, I contrasted this with a post on repeated monitoring of people over a thirty-year period, entitled “Same time next year”. This was inappropriate and insensitive and I apologise...

#MSCOVID19 Newsflash. Early data on vaccine responses appears.

Good news for cladribine, not so good for ocrelizumab and fingolimod Data has surfaced today at an International MS meeting on the impact of MS disease modifying treatments and it looks like it is supporting the biology. As presented by Dr Anat Archirion from Israel and as anticipated from past vaccination data, there was a poor (less than 20%) seroconversion (assessed using the Eurimmune Ig...

Rehab update: taking back control

Barts-MS rose-tinted-odometer: ★★★★★ After my life-threatening accident last year I returned to work on the 1st of February against the advice of many people. I thought getting back to work would help with my overall rehabilitation. Yes, in the sense that commuting to work and adapting my exercise programme to fit in with my workday would help my recovery. But no in the sense that my energy...

Preventive Neurology

Prof G is the co-director of the Preventive Neurology Unit, Wolfson Institute of Preventive Medicine, and will now be dedicating most of his academic time to this activity; in particular the prevention of MS. Any blog posts in relation to #MSPrevention will now be posted on his preventive neurology blog, for example, today’s post on smoking and MS prevention.

MS charities – beyond the pale

UK MS charities say they represent all people with the disease. But how can they – with so little ethnic and racial diversity at the top? Take a look: “Representation is important,” says Dr Sharmilee Gnanapavan, consultant neurologist at Barts Health NHS Trust. “When people don’t see this, they’ll likely bypass it.” And that representation – judging...

BartsMS off to the Excel for a Jab: Information confirmed

Heads up! To all with MS, on immunotherapies, heading to the Excel Centre in London for your 2nd jab… As soon as you arrive tell a staff member so you will get taken to the front of the line… and not have to wait for ages. I think where every you go, do the same. This advice from Rachel has been confirmed by Sarah (Both Blog Readers). Thanks to them for that. Spread the word by your...

MS and the Inverse Care Law at 50

Barts-MS rose-tinted-odometer: ★ Variation in access to good medical care and better outcomes has never been higher in high-income countries such as the UK. Variation is simply a euphemism for inequality. The MS community in the UK realised this a few years ago, which prompted us to launch our ‘Raising the Bar’ initiative to address inequality in access to healthcare for people with MS living in...

Progressive MS podcast

Barry Singer’s MS Living Well Podcast on progressive MS in which he interviews Mark Webb, MS patient advocate, Head of Comms at Shift.ms & Prof G, neurologist, at Barts-MS.

If you are interested there are many more other interesting podcasts on the MS Living Well platform that covers all things MS.

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