CategoryNews and events

Sad News

Today I feel like a double amputee, as I have now lost both my left and right arms. I have been working in the MS space since about 1984 and soon after that I came across Gareth Pryce who was doing seminal work on the blood brain barrier at the Institute of Psychiatry. We would bump into each other at meetings. I was at the Royal College of Surgeons of England at the time and was heartened to see...

I’d call it post-traumatic growth, actually: Experiences of PTSD in people living with MS

I’m a second-year PhD student at QMUL looking at people’s experiences of informing research through planning, designing and delivering (aka patient and public involvement, aka PPI) in the field MS. Last year I wrote a blog post reviewing an article about how an MS diagnosis impacts people.  Back in December 2020, Shift.ms posted a survey asking people about their experiences of PTSD, which for...

What is prodromal MS? 

A debate at the ECTRIMS 2022 conference next week will discuss prodromal MS and Radiologically Isolated Syndrome (RIS), and whether it should be treated or monitored. A prodrome is referred to as an early set of symptoms and signs that can appear before the major presentation of a condition, eventually leading to a confirmed diagnosis. Symptoms may include urinary, gastric and intestinal...

Inauguration Day

No, not THAT type of inauguration on the US Capitol facing the National Mall, but rather facing an audience in the Blizard Institute’s Perrin Lecture Theatre, colour scheme of which is modelled on a Poppy field, as ‘In Flanders Fields‘, with mostly green and a few dotted red seats. ProfAngray and myself gave our inaugural lectures there last night, in my case this was three...

A night out with the Profs

Part of the function of the blog is to provide information but we also celebrate our achievements, so you can register for online or in person to a night out with the two profs  Join us for the next FMD Inaugural Lectures to celebrate the work of Prof Klaus Schmierer (ProfK) and Prof Angray Kang (ProfAngry)  Date: Thu, 22 Sep 2022Time: 5-6.30pmLocation: Hybrid Event | Perrin...

Diamond Jubilee Could The Queen be a role model for Wheelchair users?

As we spend the weekend celebrating the Queens platinum jubilee or we spend the weekend celebrating having a holiday, I invite you to look around. Historically flags had a toggle on the top and a rope on the bottom (real good ones still do..see bottom picture), but eyelets have become the norm and then the conundrum. The US will be celebrating the forth of July but I doubt you will see this...

Association of British Neurologists (ABN) meeting 2022

The ABN meeting took place this year in Harrogate, North Yorkshire and was well attended by neurologists and pharma colleagues alike. The Town is very familiar to MD (aka. Prof David Baker) who has come through it all without any visible misgivings. The meeting was packed with a lot of discussions on current and upcoming MS clinical trials, service provision in the UK and treatment guidelines on...

Instead of Monday Q&As – It’s MS Awareness Week!

You may be aware there is an annual World MS Day, celebrated every 30th of May since 2009, following an initiative by the MS International Federation. World MS Day 2020-22 has been themed *connections* There’s also MS Awareness *Week*, and if you live in the US that was early last month (sorry if you missed – I did), however here in the UK it’s *this week*. A number of events...

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