CategoryNews and events

#ThinkSpeak: Rachel Horne

An interview with Rachel Horne who wrote the extraordinary blog post “The Kingdom of the Sick” (14th July 2020), which in my opinion is almost certainly the most well written and insightful piece on this blog.

CoI: nothing relevant in relation to this blog post

Digesting Science new activity: Helping families understanding Covid-19 & MS

Digesting Science is our educational project to teach families about MS in fun, engaging ways. It is aimed at 6-12 year olds but explains some complex science in really simple, straightforward ways. New Covid-19 Digesting Science activity We’ve recently launched a new online activity which explains: The immune system and how white blood cells fight infections like coronavirus.How you get immunity...

NICE & Siponimod

Here we go again. Most readers will have gathered by now that NICE has not recommended Siponimod for treating active SPMS under the NHS. This is a big disappointment for the MS community in the UK particularly for those patients who have active SPMS or worsening SPMS on a DMT who were hoping to be switched to Siponimod.  It is clear that some of the assumptions NICE have made about the treatment...

#MSCOVID19 webinar have you registered?

This week I am participating in a debate on how to manage patients with MS on DMTs during the COVID-19 pandemic. Rather than a didactic lecture, I am going to debate several issues with Dr Kerstin Hellwig in relation to two case scenarios (see below), which will highlight the evolving complexities of how to manage MS during these troubling times. If you haven’t registered yet please do so...

The human side of MS and Research: A short film

By Rachel Horne        The invitation came a year ago from University College London Hospitals. Would I be interested in being part of a film that looked at how research impacts people with MS? Why not? I’d been in a few of these over the years. A morning filming, a few questions posed to the experts, some vigorous on-camera nodding – and by the afternoon I’d be on my way. Then I looked at...

HAPPY WORLD MS DAY!

Today is World MS Day 2020 and its theme is ‘connections’.  MS Connections are about building community connection, self-connection and connections to quality care. The event is coordinated by the MSIF, who want to challenge social barriers that leave pwMS feeling lonely and socially isolated. Together, they are advocating for better services and are celebrating support networks. Another action...

East Africa and MS

COVID-19 impact has extended to East Africa. Instead of a face-to-face meeting, the East African Neurologists have moved their CPD (continuing professional development) online in the form or regular webinars. In the past, I would probably have had to travel to East Africa to give a guest lecture at their annual meeting. Post-COVID-19 I can now do this online, which is a much cheaper and greener...

COVID Breakfast: Can we get a Heineken Test?

Prof G is going to get a COVID blood test next week. Is he? isn’t he? This is what we will all be asking ourselves? Are we? Aren’t we? Have we been infected on not? This will depend on the test. Is it good enough? We need the Heiniken Test…What’s that? Well based on a Beer Advert about Refreshment, we need a Test that can “Reach the Parts that other Tests Cannot...

#MSCOVID19 asymmetry

Many of my colleagues have criticised and reprimanded me for being over-enthusiastic in stating that immunosuppressive MS DMTs are relatively safe for pwMS if they happen to develop COVID-19 whilst on treatment. However, the issue has been asymmetry of knowledge. I have known that patients on DMTs who get COVID-19 are doing well. This is based on knowledge acquired from multiple sources albeit...

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