CategoryNews and events

The MS Blog Update – Your Reponses

This MS Blog has been around since 2009, started by Prof G. But he isn’t in charge of the blog, he is one of many contributors. As of May 2021, there were over 9,200 published posts. Each month, the website sees 50% new and 50% returning visitors, with over 88,000 page views a month. Most readers are from the UK, US, Canada and across Europe.  In April, the blog went through...

NHS Digital. Sharing your Data

“Wanna buy the NHS data…only one previous owner”….Arthur Daley (AKA UK Government) used-car-salesman You Need to Read this Page. The NHS is collecting data from your GP and this could be sold by NHS digital. This collection will occur on July 2021 and you have until 23 June to say whether you agree or not. No action on your part and you agree. To stop your GP doing this...

ChariotMS – we’re rolling !

And we’re off… Almost exactly three years after submitting our outline application to the NIHR-EME, the first site initiation visit of ChariotMS will take place TODAY at my home site, The Royal London Hospital. We are expecting the first of 200 people with advanced MS to enrol in June. And as the remainder of 20 sites across all nations of the UK will open over the next three months...

Help us understand more about medication adherence in MS

Taking your meds on schedule can be a challenge for people with MS. This is true of all people living with a chronic disease, but it might be particularly hard for PwMS. This could be because MS is a very long disease requiring medication over many years. There is also a lot of uncertainty and it can be tough to be reminded about MS every time you take your meds. As you know, if meds are not...

Deed Poll for BartsMS Blog

Hello peeps. I need to paint a different picture of myself and in lock down I have not been able to wear a lab coat for ages. I haven’t been able to be a MouseDoctor, which is good news from the beasties, but as you all know I’m not a real doctor. Vincent Mouse The orange COVID mask has cut off my circulation and it made my ear drop off:-). I have my artist outfit on as we are having...

Passing on the baton

Barts-MS rose-tinted-odometer: ★★★★★ As an academic neurologist and MS researcher, it is one thing to generate new ideas and data, it’s another thing to get people to adopt them. Therefore the dissemination of knowledge has dominated my agenda in the past few years. With a resetting of my priorities back towards research I have passed the education baton to younger colleagues. This includes my...

An existential crisis

Barts-MS rose-tinted-odometer: zero-★s The Barts-MS blog is having yet another existential crisis. Have you been to Speakers’ Corner on the Northeast point of Hyde Park in London? If you haven’t I would recommend visiting and spending an hour or so watching and listening. Speakers’ Corner is where anyone, who is anyone, can stand on a soapbox and speak their mind on any topic that takes their...

Under&Over: we need your help

Since being hit by a motorbike travelling at high speed and nearly losing my life or independence I now have personal experience of the value of physical neurorehabilitation. When I say #UseItOrLoseIt I really mean it. So if you have more advanced MS and are using a walking stick (EDSS 6.0) we want you to enrol in a #CitizenScience type study in which we are testing a new hand and arm activity...

#MSCOVID19: triMSx-online

You may remember that about 6 years ago the idea was germinated on this blog to launch an online version of ECTRIMS to reach people in low- and middle-income countries and to allow more women with family commitments to attend meetings. The other aim was to usher in the next generation of young MSologists; more women, younger people, more ethnic diversity and from all regions of over the world, i...

Apology to people with MS and the Neurologists who were upset and offended by my post

I write to apologise to anybody who was upset or offended by my recent post on AttackMS, which is in support of a trial of natalizumab in people who likely have MS at the time before their diagnosis. Foolishly, I contrasted this with a post on repeated monitoring of people over a thirty-year period, entitled “Same time next year”. This was inappropriate and insensitive and I apologise...

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