CategoryNews and events

Diamond Jubilee Could The Queen be a role model for Wheelchair users?

As we spend the weekend celebrating the Queens platinum jubilee or we spend the weekend celebrating having a holiday, I invite you to look around. Historically flags had a toggle on the top and a rope on the bottom (real good ones still do..see bottom picture), but eyelets have become the norm and then the conundrum. The US will be celebrating the forth of July but I doubt you will see this...

Association of British Neurologists (ABN) meeting 2022

The ABN meeting took place this year in Harrogate, North Yorkshire and was well attended by neurologists and pharma colleagues alike. The Town is very familiar to MD (aka. Prof David Baker) who has come through it all without any visible misgivings. The meeting was packed with a lot of discussions on current and upcoming MS clinical trials, service provision in the UK and treatment guidelines on...

Instead of Monday Q&As – It’s MS Awareness Week!

You may be aware there is an annual World MS Day, celebrated every 30th of May since 2009, following an initiative by the MS International Federation. World MS Day 2020-22 has been themed *connections* There’s also MS Awareness *Week*, and if you live in the US that was early last month (sorry if you missed – I did), however here in the UK it’s *this week*. A number of events...

A call to arms, your upper limbs

ChariotMS is gaining traction, however not yet quite to the degree we would have liked. As you may remember, our trial milestones had to be revised, and our immediate target was to enrol 60 people with advanced MS (pwAMS) by the end of June, and we called this our “60:6 challenge”. At the time we took the decisions, it looked like a realistic plan. However, setting up trial sites for...

Drug Costs

This weekend I have to debate that anti-CD19 and and CD20 are all the same and am in for a bit of a kicking as I am debating against a clinician. Like a lamb to the slaughter I am never going to win this one, because turkeys don’t vote for Christmas! I should say no. Importantly, the organizers have thrown in a curve ball and brought in off-label antibodies into the question. Anti-CD20...

MS Frontiers – get your abstracts in

With one year delay, this usually bi-annual meeting for researchers in the field of MS will take place 7-8 July 2022 in the popular waterfront city of Swansea, and I’m looking forward to it. “New beginnings” was our sub-heading for the meeting, but that seems to have dropped, at least temporarily, though in spirit it remains our motto: Whilst learning to live with COVID-19, the...

The MS register reaches 5000

The U.K. MS Register now has 5,000 linked participants. Why not help them get to 5001 or 2. You can volunteer if you live in the United Kingdom. In the year of its 10th Anniversary, the U.K. MS Register has reached a new milestone. By linking with the Register, 5,000 people with MS are not only providing data directly to the MS Register online, but have also agreed to have their NHS medical...

#AttackMS

AttackMS was conceived on the 29th of Nov 2017 over a beer or two (or was it Elderflower?) at the Lago Maggiore. Prof Jeremy Hobart (Plymouth), ProfG and I sat down on the eve of the annual meeting of the European Charcot Foundation in Baveno, and I said something along the lines of: “Why don’t we treat MS with highly effective disease modifying treatment (HE-DMT) at first...

Guidelines for Off-label drugs

This is open access so you can tell me what you think of this? Do you understand the process? Piggott T, Nonino F, Baldin E, Filippini G, Rijke N, Schünemann H, Laurson-Doube J. Multiple Sclerosis International Federation guideline methodology for off-label treatments for multiple sclerosis. Mult Scler J Exp Transl Clin. 2021 Dec 7;7(4):20552173211051855. doi: 10.1177/20552173211051855...

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