CategoryNews and events

#MSCOVID19 – DMT update (2)

This week saw several bits of information appear that has led me to change my position on several DMTs in terms of their risk for pwMS during the COVID-19 pandemic. Firstly, the verbal update by Maria Pia-Sormani on the Italian cohort of patients with MS who had COVID-19. These figures were given during the iWiMS weekly COVID-19 &MS webinar. There are now 380 cases of pwMS and COVID-19...

#MSCOVID19: assessing and managing relapses remotely

Can we assess MS relapses remotely?  Yes, I think we can. Most neurological assessments are based on history and examination. You definitely can take a history of new-onset neurological symptoms by telephone, or preferably using video consultation. I am currently using accuRx the most widely adopted NHS platform for remote consultations. It is remarkably easy to use and satisfaction levels are...

COVID-19 & MS update from Australian neurologists

I received this email, which may be of value to you all. Latest COVID-19 information for people with MS UPDATE FROM MS NEUROLOGISTS – 08/04/20 Advice for persons with multiple sclerosis and related disorders regarding the COVID-19 pandemic Dear MS Stakeholder, We hope you are keeping safe and well since our last communication. In our last COVID-19 update to you on 27/03/20 we shared a statement...

Does immunosuppression protect you from severe COVID-19?

The hypothesis that immunosuppression may protect you from severe COVID-19 is gaining traction. New data released on the 4th April 2020 from the UK’s Intensive Care National Audit & Research Centre suggests it may. When comparing 2249 patients admitted to ITU in the UK with severe COVID-19 the proportion of immunocompromised patients was 3.7x lower than the proportion of...

#MSCOVID19: who has the power and chutzpah?

If you have MS and think you are vulnerable to severe COVId-19 have you asked the obvious question? How long do I shield or self-isolate for?  The impact of Boris Johnson’s admission to ITU with severe COVID-19 on the collective mind of the UK will be substantial. I suspect pwMS who think they are vulnerable will now go into shielding mode in an attempt to never get exposed to SARS-CoV-2. Is this...

Guest post: social distancing

Dear everyone.  As an infectious disease epidemiologist, at this point feel morally obligated to provide some information on what we are seeing from a transmission dynamic perspective and how they apply to the social distancing measures. Like any good scientist I have noticed two things that are either not articulated or not present in the “literature” of social media. Specifically, I...

#MSCOVID19: update on the outcome of cases with MS & COVID-19

We keep getting asked about if there is any data on whether or not people with MS are more likely to get COVID-19 if they do get are they more likely to get the severe disease and die from the infection? Last week I logged into a very useful webinar organised by the iWiMS. They have now put the webinar online for you to watch. The Italian registry reported 143 patients with MS and COVID-19 with...

Speedy recovery

We hope the MD1 (Mouse Doctor 1) makes a speedy recovery. He is unfortunately in self-isolation with a high fever and dry cough. He and his wife have both contracted COVID-19. Ware Village Speakeasy, Hertfordshire, linked to spread of COVID-19. Public Health England epidemiologists have tracked down a large cluster of COVID-19 cases to an illegal speakeasy in the Hertfordshire village of Ware...

Crip Camp: the Obamas documentary on disability

By Rachel Horne I know this blog has lately been filled with updates on COVID-19 and MS – and rightly so. However, if you are at home – and looking for something hopeful to watch during these overwhelming times – try this new award-winning documentary Crip Camp: A Disability Revolution – which was executive produced by Barack and Michelle Obama. The documentary focuses on...

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