AttackMS is a trial by ProfK that offers the individual the chance to get on natalizumab rapidly after entry into the health care system with the opportunity to receive natalizumab whilst the diagnostic work-up occurs and then to either stop treatment – if the diagnosis of CIS or MS is not confirmed – or continue taking natalizumab as a first line treatment, or switch to an...
The MS Trust turns 30 – congratulations! Read an overview here of its history from humble beginnings when Chris Jones & Jill Holt started selling Christmas cards to provide information & support to people with MS. The MS Trust has done many good things. Five years ago, just as we were in the final stages of getting our ducks (=grants) lined up for #ChariotMS they launched their...
Normally I don’t stick my head into anything vaguely political, once burnt twice shy and all. But because of COVID, monkey pox and Donald Trump’s restitution in Twitter land and his planned return to the presidential campaign in 2024, life is nothing short of fuel for the socialist mind. Alas, all socialist economies stagnate and wither; which isn’t a good enough reason for...
A debate at the ECTRIMS 2022 conference next week will discuss prodromal MS and Radiologically Isolated Syndrome (RIS), and whether it should be treated or monitored. A prodrome is referred to as an early set of symptoms and signs that can appear before the major presentation of a condition, eventually leading to a confirmed diagnosis. Symptoms may include urinary, gastric and intestinal...
Domestic violence, often known as domestic abuse or intimate partner violence (IPV), is any pattern of behaviour aimed at establishing or maintaining dominance and authority over a partner. IPV is any kind of sexual, emotional, financial, or psychological harm or threat against another person. IPV is one of the most prevalent forms of violence against women worldwide [excerpt taken from this...
Controversies in Neurology (CONy) launched about 15 years ago as an annual get together for neurologists to discuss topics where there is no single answer. And there are obviously many questions without a single answer in neurology just as in medicine as a whole. Over the years, CONy has become a fixture in the calendar of many of my colleagues. I co-chaired the MS section in March; here’s...
You may be aware there is an annual World MS Day, celebrated every 30th of May since 2009, following an initiative by the MS International Federation. World MS Day 2020-22 has been themed *connections* There’s also MS Awareness *Week*, and if you live in the US that was early last month (sorry if you missed – I did), however here in the UK it’s *this week*. A number of events...
Dominic Shadbolt () It Shouldn’t Be Like This (But It Is) Go with me on this… Someone finds a funny lump on their testicle or breast so they call the GP to book an appointment and get it checked out. Once the GP has checked it out and is suspicious, the person is catapulted onto a cancer pathway that presumes it is cancer until proven otherwise. This happened to me recently, and in the UK...
Hello !! I am Saloua Mrabet, the new MENACTRIMS fellow. I am an MSologist from Tunis, Tunisia. I am interested in Multiple Sclerosis and related inflammatory diseases and especially some hot topics in this field: HSCT, highly active DMT, Ethnicity and MS, genetics of MS and Women’s Issues in MS. Happy...
This is open access so you can tell me what you think of this? Do you understand the process? Piggott T, Nonino F, Baldin E, Filippini G, Rijke N, Schünemann H, Laurson-Doube J. Multiple Sclerosis International Federation guideline methodology for off-label treatments for multiple sclerosis. Mult Scler J Exp Transl Clin. 2021 Dec 7;7(4):20552173211051855. doi: 10.1177/20552173211051855...