TagCOVID-19

MS and the Inverse Care Law at 50

Barts-MS rose-tinted-odometer: ★ Variation in access to good medical care and better outcomes has never been higher in high-income countries such as the UK. Variation is simply a euphemism for inequality. The MS community in the UK realised this a few years ago, which prompted us to launch our ‘Raising the Bar’ initiative to address inequality in access to healthcare for people with MS living in...

#MSCOVID19: specifically for NHS England

Barts-MS rose-tinted-odometer: ★★★★★ Early on in the pandemic, I did a blog post on why I thought oral cladribine was the ideal DMT for managing MS (26-April-2020) remotely. I summarised cladribine’s attributes in a simple 12-point list. This list can now be updated to include (1) data on good COVID-19 outcomes in pwMS who have been treated with cladribine, (2) about vaccine readiness, i.e...

#MSCOVID19: Vaccine Q&A page is now live

Barts-MS rose-tinted-odometer: ★★★★★ Just to let you know that the I have answered all the reasonable questions that have come in via the COVID-19 decision aid. To keep it simple and to allow me to be more responsive I will simply update the online document every day or so. This is similar to what I did with the MS-Selfie Microsite I ran for at the beginning of the pandemic. Loading… Loading…...

#MSCOVID19: Vaccine Decision Aid ver. 2.0

Barts-MS rose-tinted-odometer: ★★★★★ Thank you for the feedback on my rough-and-ready decision aid. It is clear there is a need for it. I have spent a bit of time adding DMT-specific pages to the aid and added sections on ‘Which vaccine?’ and ‘Pregnancy’. I have also added a page with useful links. I have also set the sound to be on-demand rather than being automatic; so...

#MSCOVID19: What is vaccination?

Barts-MS rose-tinted-odometer: ★★★★★ What is vaccination? A not so simple medical procedure. Vaccination is probably one of, if not, the most important scientific/medical inventions in modern history. We need to celebrate it for just that and appreciate the number of saved lives and improved quality of life it has brought to us as a species.  Now that we broadly know how the immune system...

#MSCOVID19: vaccine decision aid

Barts-MS rose-tinted-odometer: ★★★★★ Due to the number of emails and/or messages about the COVID-19 vaccines and MS I have been receiving I have put together a rough-and-ready decision aid to deal with the most common questions that have arisen so far. Please note this is a beta version using Google Slide’s technology. As questions come in I will update the decision aid. If you think it is...

#MSCOVID19: from the horse’s mouth

Barts-MS rose-tinted-odometer: ★★★★★ The horse’s mouth = the MHRA (Medicines and Healthcare products Regulatory Agency) I have received several vexatious emails accusing me of subjecting my patients, and people with MS (pwMS) in general, to an experiment by recommending and promoting the COVID-19 vaccines. I want to remind the readers that we need to listen to experts. I was challenged that...

We need you!

Barts-MS rose-tinted-odometer: ★★ Did you know that as of September 2020, only 54.1% of the public in the UK and 42.5% in the USA would ‘definitely’ accept a COVID-19 vaccine to protect themselves?  I sincerely hope these figures are wrong and have changed substantially since September 2020. Why? These vaccine acceptance rates are lower than the proportion of vaccinated people required to achieve...

#MSCOVID19: misinformation vs. disinformation

Barts-MS rose-tinted-odometer: ★★ One of the reasons I started blogging was to counteract misinformation and eventually disinformation about CCSVI. CCSVI which started off as a hypothesis, supported by flawed and biased initial studies (misinformation) that was rapidly spread via social media channels, which then morphed into a disinformation campaign. The CCSVI disinformation campaign included...

#MSCOVID19: vaccine hesitancy

Barts-MS rose-tinted-odometer: ★★★ She is in her early thirties and is a first-generation ethnic minority immigrant to the UK. She was diagnosed as having MS 6 months ago after presenting with optic neuritis and a subsequent spinal cord syndrome. She is due to start on ocrelizumab in the next few weeks, but we want to delay her start until she has her first dose of one of the COVID-19 vaccines...

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