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To be vaccinated or not?

The following is a preliminary summary of the UK MS Register’s survey to establish how people with MS (pwMS) viewed the arrival of the COVID-19 vaccinations. Importantly, the data shows that despite being quite vocal the anti-vaccine message doesn’t seem to be having the same effect in the UK as it is in other countries. Fewer than 6% of respondents said they would probably or...

Guest Post: Working with Multiple Sclerosis During Covid-19

People are usually diagnosed with Multiple Sclerosis (MS) between 20 to 40 years of age, the prime working years of an adult. However, fewer than 50% of people with MS remain at work after 10 years of diagnosis, decreasing to 20-40% after 15 years. Apart from the number of people that become unemployed after a diagnosis of MS, there is also a large proportion of people that need to reduce their...

Guestpost: Neurofilaments vs. ‘The straight-line instinct’!

Biography I am new to the blog and Barts-MS. I am Dr. Ide Smets and I am an ECTRIMS clinical fellow working in the Barts-MS team. My country of origin is Belgium which is famous for having six governments, for having a national dish that is claimed by another country (French Fries) and for going wild about cyclocross (bring it on Chris Froome ;-)). In 2018, I obtained my PhD in biomedical...

#MSCOVID19: frontline

Working on the COVID-19 frontline comes with risks, not only personal risks but risks to your family, fellow NHS staff and for other patients who you have to see in face-to-face encounters on the wards or in urgent clinics. This explains why healthcare workers are so anxious. It is now clear that COVID-19 is a bit of a lottery; most people survive, a few scrape through and tragically some...

Crip Camp: the Obamas documentary on disability

By Rachel Horne I know this blog has lately been filled with updates on COVID-19 and MS – and rightly so. However, if you are at home – and looking for something hopeful to watch during these overwhelming times – try this new award-winning documentary Crip Camp: A Disability Revolution – which was executive produced by Barack and Michelle Obama. The documentary focuses on...

Iranian MS Hypothesis

Dear Professor Gavin Giovannoni Significant increase in the incidence of multiple sclerosis in Iran has been always puzzling. With strong evidence from Danish MS Registry (Nielson et all) early environment rather than ones genetic is the primary etiological agent for Multiple sclerosis. Iran was exposed to this agent much earlier than other Gulf countries. British and Russian troops invaded Iran...

NOSE-TO-BRAIN DIRECT

A guest post from Dr Frederick Gay, School of Life Sciences at the University of Essex, Colchester. “There- is- an- underground passage,”,said the Badger impressively,”that leads from the riverbank, quite near here, right up into the middle of Toad Hall.” O nonsence! said Toad rather airily, “You’ve been listening to some of the yarns they spin in the public houses about here.” Kenneth Grahame...

Guest-post: MS mindset

Many people with MS experience cognitive difficulties (poor concentration, trouble remembering, “cog fog”…). We know quite a bit about how these difficulties play out on formal tests that psychologists use. But we are less good at understanding the experience of people with MS with cognitive difficulties. There are a number of questionnaires that report cognitive difficulties that have been...

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